I am not clear about many aspects of my Cirrhosis diagnosis. It has taken me a fortnight to write questions to discuss with Liver Consultant on 2nd April. In discussion with my son tonight he said I am becoming obsessed about questions about my liver and overall health!!! He asked me.........”why do you want to know? Will it make any difference to your outcome “????? You need to spend your remaining time (however long that is), doing things you enjoy. He is worried about my huge muscle loss, plus other things and wants me to exercise. Should I cancel all forthcoming appointments and not have any more tests and consultations? I never get adequate answers anyway, plus I am weary from waiting for appointments, waiting in waiting rooms, waiting to have tests, waiting for. Results of tests, waiting to feel better, paying exorbitant parking charges for the pleasure of all this waiting. All this to just understand what is going on with me. I love my son and I know he is concerned but if I can’t get answers from the Liver man or GP so what what am I supposed to do?????
When does “asking questions about diag... - British Liver Trust
When does “asking questions about diagnosis and prognosis become an obsession”??
Hi splodge
I think an awful lot of us empathise with your situation.
I can remember - for me remembering anything of the time before my transplant is very hard 😬 - but I do remember that I was told very very little about anything at all that was going on in my body!!
I was not a member of this fantastic forum at that time so I lived - just about 😀 - in blissful (or maybe not blissful) ignorance.
None of us can really say whether you worry to much or not. But who doesn’t worry. I still worry about lots of related and non related (or are they?) health issues despite having had my TP 18 months ago......
However to comment on your point about how long it has taken to think up questions to ask I suggest having a look at
britishlivertrust.org.uk/li...
See the last section where a list of potential questions you can/could ask is provided.
Good luck, and I think your son is only showing his concern for you!!
Miles
Your son is right! Do things you enjoy, but also keep going to your appointments, be patient. My son would always ask how long his daddy would live, and my response was, however long God let's him live, we will give him a good quality of life!! Spend time with those you love, life is too short!! 🤗🥰
I would love to but events have overtaken all of us on this. You are right though xxxxx
