Morning everyone 🙋🏻
Hope everyone is ok?
Looking for some advice please. Diagnosed PBC 10 years ago. I'm on transplant waiting list, very very high bilirubin, INR and UKELD score going up. Generally feeling rubbish and tired and I know common symptom to many but always freezing cold. Some days I shiver under my blanket with my hot water bottle. Once a month hospital appts with consultant and bloods done etc.
So, there is my summary of health. My advice is that for past week I have developed swollen ankles and legs. They actually hurt and often I jump up with cramp. Been keeping them elevated, follow low salt diet anyway due to my PBC and liver.
If I went to my GP, can we have water retention tablets prescribed to us with liver cirrhosis?
I tend to have a bit of swollen stomach anyway as have had IBS for 20 years. I have noticed my weight increase of 10lb in past month and some fluid around stomach too. Not been over eating and think it's weight increase due to fluid maybe?
My options are GP or to contact my nurse contact at hospital Monday as next consultant appt isn't until 14th Dec.
Thanks everyone and sending you all much love. Nicki 💞