Hormone tablets

[galgo]

Good morning .Anybody stopped taking the hormone tablets we are given.I have tried all 3 and the pain unbearable so decided thats it.I will carry on with the her herceptin and hope all the treatment I have had keeps it from returning

[carolinenailsea]

Sorry I cannot help. I was triple negative so I do not have any tablets to take post my treatment (chemo, surgery, radio). The treatment can be worse than the illness especially with cancer. You must make the decision thats right for your quality of life. BW caroline xx

[Chick44nzrn in reply to carolinenailsea]

Hi Caroline .i always like your advice and replies! Yes it seems the treatments can seem far worse than the disease .

Best wishes

Denise x

[Birthday2018]

I'm on anastrazole and know what you mean. My joints hurt everyday, when I get up on a morning until I start moving I feel about 90. They are not the best but at the moment staying on them. I was ER+ PR+ and HER2+ so did seven sessions of chemo and then after surgery onto tablets and herceptin every 3 weeks, 17 in all. It is hard but I have started a pilates class at the Haven and although the first class was awful and I felt so unflexible it is getting better and I think helping with the pain.

I think we all have to do what we think is right. Good luck for the future and hopefully all will be fine for both you and I xx

[galgo in reply to Birthday2018]

I am also on Anastrazole 15 rounds of chemo 18 rounds of Radiotherapy 12 Herceptin so far I am HER+2 so I am going to try half a tablet for a week see how I get on that way it's nights that are the worst I am very active perhaps to much My nurse last week thought it might be that I have had enough Herceptin nobody knows

[waveylines]

Have you had your bone density checked?

I had aches and pains so put on bone strgetheners and Adcal after bone density scan show osteopenia. Pains mainly gone now....

[galgo]

No I haven't but on injections for my bones

[waveylines]

I was on Herceptin.....it affected my heart not my bones. Letrozole was what affected my bones. In your shoes I would ask for a bone density scan. Surprised they've not done it. Ive been on Anastrole now for over four years. My Oncologist told me the bone loss is less with Anastrole than with Letrozole. Unfortunately all the brands of that type of meds do cause bone loss. My bone strengthener is a tablet I take once weekly.

My Onc wants me on Anastrole for ten years but I very much doubt I will be willing to stay on it that long! It was five years originally!

[galgo in reply to waveylines]

I have the bone strengthen by injection every 6 months

[Birthday2018]

I've only been on anastrazole for, this is my 7th month and, as I said earlier I do have aches and pains. Sometimes the aches and soreness in ribs I thought was maybe stretching too much but maybe as someone else has said they think it is from the tablets? Not so sure now?

I am on it for 10 years the oncologist said so really not far in. I have found sticking to the same manufacturer is better for me as once it was different and couldn't believe the difference in me. My breast cancer was oestrogen receptive (ER/PR+ and HER2+ so I am hoping that this will help and it won't come back. I had 3 cycles of EC and then went onto docetaxol with pertuzumab and trastuzumab x 4 cycles. Surgery (mastectomy) and now following with herceptin for 1 year (incl 4 with the chemo). I cannot however have the herceptin in my leg as found the pain everytime excrutiating afterwards so have it intravenous as with chemo. I also take a bisphonate tablet together with Adcal D3 to help with my bones (I was on Adcal D3 anyway as suffered with an eating disorder for over 30 years and this seems to have worked up to now for me). I hope that you can tolerate the tablets and wish you well in the future. All I keep thinking is I need to stay positive and hope I am well for many years.

[waveylines]

Hi birthday18 its a gruesome course of treatment & you are getting there!!.....

hopefully my little tale will encourage you all on.

I was diagnosed 5years ago with a very aggressive form of bc (very fast growing) my tumour was 9 cms! , ER+ & Her2+. I had 3rounds of FEC & 3 of Docetaxol, masectomy, 15x rads and alongside this 6months worth of Herceptin. Ive had breast reconstrction (DIEP & breast uplift) Of course still on the Anastrole....feels like forever on that one! I am 5 years on now & still clear.....

BC does change you as you realise life is for living now & it helps you to realise what is important to you. You learn to live more in the moment & I try to live peacefully -who needs agro?! I am lucky to be here & long may it continue!

I hope the rest of your treatment goes smoothly for you all & you all recover well. Hugs xxx

[Birthday2018 in reply to waveylines]

I’m so happy to hear from you and that you are doing so well

I hear what you say and it is right, you do want everyday to be special, meaningful and your thoughts of your future do change.

I wish you well in the future as I do everyone who is part of this forum. Each year will be another milestone I know for me. I finish herceptin in August and think even now it will be hard to know that no more and just the medication then. I think I do struggle sometimes which is probably not news to anyone and so wish there was more support out there once the hospital visits are scaled back and it’s just you on your own. I go to the haven in Leeds and find that helpful, it feels like home when I go and know that there is always someone to talk to if I’m having a difficult time.

Lots of love and luck for the future, might seek advice from you again xx

[waveylines]

Awww Birthday18 Thankyou so much for your lovely comment! 😊 Am so pleased to hear you are doing well too. 🤗🤗🤗 Yay!!

Yes when all the hospital visits stop, bar the annual, it feels weird - its a time of adjustment & time for processing what youve been through. Time will heal & though its always lurking at the back of your mind you will find it all gets easier honest.

Ive found the estrogen blocker a bit of a pain. Make sure they keep an eye on your bones as it has a nasty habit of stripping them. So ask for a Dexa scan. Am on a bone strengthener nothing terrible, weekly treatment via a tablet!

Although its a lot of treatment to have had to go through am so happy to be here and now I can do a bit of exercise, albeit very basic, am gradually regaining strength & stamina.

The Haven is a lovely place, I know some else who goes too, but its a bit of a trip for me so only been once.

Wishing you the very best & ongoing well ness. Hugs xxx