7mm Ophthalmic artery aneurysm

[Vicki1709]

Hello,

I'm looking for advice re ophthalmic artery aneurysm.

I have been diagnosed with a 7mm aneurysm. I'm now waiting for a MDT Meeting by specialists at the QE hospital in Birmingham to decide what's going to happen next.

I currently suffer with headaches, blurred vision and my sight has deteriorated only right eye but my consultant says it's nothing to worry about??

[Dudeebutt]

I had a cataract surgery in March 2019 which did not resolve my R eye blurry vision. I had an MRI which showed giant aneurysm that was pushing on my L optic nerve. I had an angiogram then the flow diverter stent and 16 coils was placed. A week after the procedure, both my eyes deteriorated badly. I lost peripheral vision on both eyes and was not allowed to cross street on my own nor drive. They put me on extended steroid taper for the edema in my brain. I was told recovery was going to be slow- 3 to 6 months. I had low vision and was vacillating between accepting it and depression. I could not go back to work. I was homebound. It started getting better around the 4th month as shown on my visual field testing and eye exam. I am much better now although the R eye still has some peripheral blindness. I am scheduled for a repeat angiogram in 2 weeks and I am hopeful that I am cured and I can move on with my life.

[Vicki1709 in reply to Dudeebutt]

Dudeebutt thank you for your reply.

My consultant at the moment seems to be sitting on the fence, he even says that my symptoms may be nothing to do with the 7mm ophthalmic artery aneurysm....

He's waiting to hear the outcome from my case being discussed at the MDT meeting at the QE Hospital.....

[Nettiefour]

Hi Vicki, I had surgery 4 years ago at the QE Birmingham for a14mm right ophthalmic aneurysm, coils and stent.

If the consultant was worried you would of been admitted immediately as I was, I had blured vision and headaches.

Surgery went very well and after a few days sent home to recover, I have just had the great news that there has been an improvement in my field of vision, my Annie damaged my optic nerve, I drive and can do all the things I did before except thread a needle. Recovery has taken time because of extreme fatigue.

I wish you well and the hospital care excellent.

Annette.

[RuthJ]

Hi I had a 6mm one diagnosed Jan18 at the QE I had horrendous headaches also and was told some as you may not fix them. And for me it hasn’t I had web device and 2 stents put in 23rd Apr. Fatigue is horrendous and I forget some words for things. I was in overnight and rested at home for 2 weeks in driving for 6 weeks. Had my follow up mri last week and now waiting for angiogram as the machines are being updated then follow up with doctor. I am covered in bruises everywhere from taking anticoagulants which I need to take for 1 year. Good luck but really hasn’t improved my headaches xx

[Vicki1709 in reply to RuthJ]

Hi Ruth,

Thank you for your reply.

I am sorry to hear your no better re headaches.

You mention fatigue, did you have this before having the procedure?

Was the web device and stents done via groin?

X

[RuthJ in reply to Vicki1709]

Hi sorry for delay. A little fatigue before but nothing like this and I forget words sometimes. Yes it was via the groin. Had my 6 month MRI scan but waiting for the MRA as the machines are being updated then back to see the consultant.

I’m glad I had it done knowing it was there was driving me mad.

Good luck xx

[Dudeebutt]

Hello again, I am 6 months post coil and diverter. I just got home from the hospital for repeat MRI and the neurologist is pleased. I am 99% cured. Will go back in 6 months for last MRI. My vision has gotten better and recovered most of my eyesight back except the peripheral vision on R nasal area where the Optic nerve had some damage. The only thing that complicated this time was the bleeding and subsequent hematoma on my R arm where they did the catheter insertion. i had to go to the operating room for exploration of my arm, ligate the bleeder and evacuate hematoma. It extended my stay to 2 days instead of outpatient. We are not doing the arm next time. My doctor said it will be less complicated if we stick to femoral artery than radial artery. Good luck.

[Vicki1709 in reply to Dudeebutt]

Hello

Thank you for your update, I'm pleased to hear all seems positive for you.

I'm still waiting to hear back from QE re what they plan to do. In the meantime though my headaches have got alot more intense, with nausea and fever. They seem to also get more intense the more active I am.

Hopefully I will hear soon.😊

[RuthJ in reply to Vicki1709]

You need to keep chasing them up be a pest😀 is it Dr Lamin. Keep trying feel better soon xx

[Vicki1709 in reply to RuthJ]

Hi Ruth,

I'm seeing Neurologist - Private and he's referring me to QE for MDT to decide treatment. As he says they don't treat aneurysms at little Aston.

I may know more today as have appointment with Neurologist, but not holding my breath.

No doubt I will be told yet again the headaches and symptoms are not due to aneurysm..... ☹️

I've decided that if today is a waste of time I am going back to my GP to push for them to get me seen at the QE.