Getting fed up of the phrase "lucky t... - Brain Aneurysm Su...

Brain Aneurysm Support

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Getting fed up of the phrase "lucky to be alive"

9 Replies

Lucky? Yup just like winning the lottery, having a brain heamorrage and still being about, headaches, forgetting the thing you ate doing, forgetting what you need to do, crying over nothing, feeling like your head is full of cotton wool, losing family and friends, not being able to do 20 percent of tasks, getting talked to as if brain surgery lists about the same as a common cold, lucky I certainly an not. Maybe the ones that don't make it are unlucky, I'm not doubting that. But don't ask me to be thankful and feel lucky for having my life ripped apart in an instance, I think the lucky ones don't make it.

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9 Replies
Danger19 profile image
Danger19

Hello my friend,

I know exactly what you are saying and how you feel. If I hear the words, “Vikki, they gave you a 5% chance of surviving and you were back to yourself with no disabilities or problems in three days of waking up, you are so lucky, you should be thankful.” It drives me absolutely crazy. I want to tell them “tell me how you feel once it happens to you!” I expect this from my two children but adults do my brain in. Plus I have a mum who won’t tell me anything, she wouldn’t even let me see the news when my friend died or attend his funeral. All she says is I need to slow down or I’m gonna have a brain haemorrhage! She even tells my children not to tell me anything or they will give me a brain haemorrhage and I will die. My children were told enough times that I was going to die. They don’t need to hear this from their grandmother. Unfortunately I have no idea of what to say to make you feel better except that I totally understand how you are feeling. As for the scum that have turned their back on you, it says more negatively about them than you my friend. What with this and the way you are struggling with the DWP, my heart goes out to you. Remember you are in my thoughts and I am really hoping you find some peace and happiness soon.

Take care my lovely,

Vikki

in reply to Danger19

I'll be fine, losing friends that I will be better off without is fine by me as the joke " what brain" has caused me to snap at people.

Tracy331 profile image
Tracy331 in reply to Danger19

My gosh you both have it hard my kids just say you'll be fine and carry on as normal my thoughts and love with you both xxx

shezy profile image
shezy

Its sad you are left feeling this way .. i haveny had a rupure as yet just got these lodgers in my brain and so far no answers x

in reply to shezy

Having had my aneurysm coiled ( they may have to operate again) the operation side of things is ok. My problems are from the bleed beforehand. I'm ok though. Thanks. Hope you are good. X

Shon48 profile image
Shon48

I do hope after 9 months you are getting a little better . So frustrating and I know exactly what you mean. I had my huge aneurysm coiled and stented in June 2018. I still can’t walk on my own . , so dizzy it’s depressing. The physiotherapy doesn’t help , she says if you don’t use it you lose it. Very funny 😁 I miss the old me , I miss cleaning my house and doing the ironing . I’ve been told it can take years to feel any better . Great !!! Hope you are a little better .

Dudeebutt profile image
Dudeebutt

Lucky and “ you don’t look sick” are annoying to me. I am not sure how to react to that. I was on 6 month Disability due to my giant aneurysm. I look fine but the damage is inside my brain and vision.

Shon48 profile image
Shon48 in reply to Dudeebutt

Absolutely . Apart from my right eye not closing properly I look fine .unless you have or are going through it nobody knows . I hope your dizziness gets better tomorrow/—huh .

Dudeebutt profile image
Dudeebutt

With a wink of an eye!

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