Log in
British Lung Foundation
39,140 members45,983 posts

So scared of the unknown r

AHi everyone , I have a new consultant and have seen him once I go back in oct. I've been for so many breathing test and my sputum has been examined many times. The last test I had was monitol test and I didn't do well at all my breathing got so bad during it that they stoped it befor even half way and I was put on nebuliser. I've now received an appointment for Monday 21st Aug to get 2 tests called NM lung ventilation spect and NM lung perfusion spect, I've no idea what this is for or what they will do but for some reason I'm terrified I can't stop crying. The only clue the letter gives is nuclear medicin . I can't get appointment with my gp befor the test I really feel in the dark. I'm just feeling really run down reacently I've got kidney problems also and have been in a lot of pain lately with it also my chest has been really bothering me with cough and breathless and chills and then high temp. I feel really guilty moaning as my partner took a hear attack 8 weeks ago he's all I have in the world but he is a fighter and is doing great at the moment and has started to do the thing he loves his garden I'm so proud of him but having both of us unwell at same time with no one else to help us is making me feel so angry at myself for being ill. I am sorry for such a long post I think I've got so much worry now as cardiology can't help my partners heart condition and we're brutally honest and did tell him last year he would have s heart attack and his condition has been present from birth and he's lucky to have made it to 47 without a heart attack. Sorry I'm going on and on I think my nerves are a bit shot . I'm so scared for us both . I wish you all the very best of health and thanks to you for listening x🌹

14 Replies
oldestnewest

Hi Shazrab

So sorry to hear you and your husband are having such dreadful time with your health issues. No point hun in being angry at yourself, it was not in your control.

I hope your tests go well and that once you have a good management plan for your illness, things will improve.

Love and good wish to you both for improved health.

cx

3 likes
Reply

Bless you , you've got it really rough right now. Fingers crossed for your tests, hope all goes well and you and your partners health improve x

1 like
Reply

Many of these doctors are so wrapped up in giving us the best quality treatment that they forget we are people with all the issues that brings .. uncertainly, fear, worry etc, etc.

Can I suggest that you ring the doctors secretary and ask if the doctor can give you a call to explain the procedure - when people request this, in my experience, the doctors are really, really good and take the time to explain. Logically, they don't want you worried or panicking so it's in their interest to calm you down.

Give them a call today ... why worry over the weekend?

You might be pleasantly surprised with their response - after all, what have you to lose by trying the suggestion?

Take care and make the call

9 likes
Reply

Thanks y not that's what I should have done asked my dr to give me a call I didn't think of this until I read your msg, och well it's now sat so I'll go on Monday and hope I get someone who can be patient with me but I'll do it in future if I've got any worry . Thanks again x🌹

2 likes
Reply

Shazrab, do ask for explanation of what the procedure means. If you show an interest, they are bound to tell you more. It's a sort of bonding with your doctor, so you can both engage in each other. All the best for Monday, Mic

Reply

((((Hugs)))) Shazrab

3 likes
Reply

I had these when I was admitted for a suspected lung embolism many years ago. Actually 2 parts to same test. 1 part is you are injected with a tracer to see where the blood is flowing around the lungs, other part is you breathe a gas to see where the air is going in your lungs. They take an image after each one. If there is a spot in the lungs that has air but no blood it shows a blockage (embolism). It is also used to check for other things.

I wasn't allowed visits from my young daughter for 48 hours and for first 24 hours my urine was bottled and sent to sellafield for storage but as I said was many years ago and may not be using same isotopes or smaller amounts now. Was referred to as gamma camera at the time.

Just working it out, think was 20 years ago.

Was no more discomfort than a CT scan.

3 likes
Reply

I'm so sorry you are both having such a rotten time at the moment, and I hope things settle down soon for both of you. Many blessings xx

1 like
Reply

Sharad sending you and your husband big hugs will pray for you both xx

1 like
Reply

Thank you all so very much for all your support and advice.i think I'm over anxious at the moment about everything . I will get all my test results in October when I go back to see the specialist and hopefully get a solid diagnosis this time instead of it could be this or that. It's great to be part of your group the support you've all given me has helped and I also being here helps me not to feel so alone and I suppose we all feel down and worry at times so thanks again everyone for listening I wish you all better days and peaceful nighs ahead x🌹🌹x

Reply

Shazrab I’m really sorry that you and your husband are so ill and it’s really rough for you.

A glimmer of hope, the test is for Monday. Do ask them what the letters mean and ask it to be explained, that’s the best thing.

I do hope all goes well this time. I sincerely hope your husband will get better too. My wishes go with you,

Mic

1 like
Reply

Hi everyone I hope your having the best day possible . I went for the scan it was to check for blood clot in my lungs the staff were lovely and explained everything that was going to happen, it was a little scary having it done as it goes close right up to your face at some points. I was told my specialist would have result in 10 days. I received a phone call from him yesterday he said scan showed I had several blood clots in my lungs he started me on a tablet called apixaban 10 mg a day for 3 months then I've to have the scan repeated , he asked if I had any questions but at the time I couldn't take it in and said no !!!! I feel like an idiot now as I've got loads of questions and I am terrified . I don't know how I've ended up with this or if it's dangerous or will the clits move , I wish they could just go in with a needle and suck them out . I am happy the dr ordered the scan and greatful that he's better than my last consultant it's just once again I'm scared and don't know what I should expect. Thanks for listening best wishes to you all 🌹🌹xx

Reply

Shazrab, please just remember that you are always better off dealing with the known rather than the unknown. Take the Medicine as directed, and then see what the next Scan shows and deal with that at that time. One step at a time, one day at a time. Kindest wishes, judg69

Reply

Thanks judge69 I'm trying my best to take things one day at a time I am pleased the scan found the blood clots and I'm not going to worry and be scared of the nxt scan , I am worried a little just now as I don't know anything about blood clots in the lung but every day I wake up I thank God for another day no matter what it will bring . I wish you well thanks for replying x

Reply

You may also like...