Very flat day: Being moved from stage... - Lung Conditions C...

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Very flat day

38 Replies

Being moved from stage 2 to stage 3 a week or so ago, I've struggled with depression. Today it's hit me quite hard. I can't seem to shake off the feeling of guilt of probably having to move the family away to somewhere that works better with my copd.

38 Replies
sassy59 profile image
sassy59

Hi Brisara, it's understandable that you feel depressed but please try not to think in terms of stages with COPD. Take each day as it comes, be as well as you can, have a good diet and as much exercise as you can without pushing yourself too much.

Do you get help with your depression? You could phone the BLF helpline on Monday on 03000 030 555 and chat to them.

Please take care of yourself and hopefully you don't need to move from your home. Xxxxx

in reply to sassy59

Thank you Sassy, much appreciated advice x

mrsmummy profile image
mrsmummy

Are you aware there is a forum on HealthUnlocked for people with depression? Maybe this would be of some help to you?

healthunlocked.com/depressi...

in reply to mrsmummy

Thank you Mrs M, I don't normally suffer with depression and am normally happy go lucky. I'm hoping to shake this off and get back to normal soon x

in reply to

and shake it of you will. these stages that map out condtion is are probley the most frighting thing i think of...or is it.

am a man with a young family too Brisara and have to face them and help them with everything and anything that they need.

they just wont be able to understand the change in me if i let depression get into my life.

i sometimes give them a big big hug and laugh..in a mad sort of way😏

in reply to

Wise words, thank you :)

healthunlocked.com/anxiety-...

And this one.

in reply to

Thank you x

Caspiana profile image
Caspiana

Hello Hidden .

I call those kind of days my "brick days". It feels like a ton of them fall on my head.😒 When my oxygen was upped a litre recently I felt the same. Despite my best efforts at eating healthy and exercise I still can't seem to stop my disease from progressing. BUT!! Here's the thing. We are here. And we are doing okay if we think about it. When I used to go the physio therapy I'd see people who couldn't walk and spent their lives in a wheelchair. On those days it really gave me a kick up the you know where.

As for moving your family, they would be totally lost without their dad and your wife without her husband. So, you've got to do whatever it takes to ensure you are around for a very, very long time. And I think I've mentioned, children are resilient. They manage far better than we give them credit for.

Hang in there friend. Thinking of you.

Cas xx 🌹🌿🌹

in reply to Caspiana

Thank you Cas xx

Just go to a mirro and talk to it yes i know you think i am koko to find a way back it do's help stage 3 is not to bad but blank out the stages as to you or me thay do not mean any thing realy so cheer up get on your swim wear and take your family for a swim go injoy and stop being a party pooper

in reply to

That made me laugh, cheers David, keep well :)

hairaffair profile image
hairaffair

So many plans ahead keep your head up and thank god everyday for another beautiful day well spent with family. Take good care of yourself and the rest will follow . God Bless

in reply to hairaffair

Thank you hairaffair :)

hairaffair profile image
hairaffair in reply to

yw try stay strong keep your faith first God is in control

Azure_Sky profile image
Azure_Sky

Being depressed is a natural reaction to shock. Let me tell you this, COPD is not an automatic death sentence. It can actually improve with exercise. Nothing too strenuous, a daily walk will do. Just enough to get your lungs working. Sitting around all day when you are able to walk is not good for you. A healthy diet, which includes vitamins, D3 in particular, will help. Some of us have more than one health condition. These vary with each person. You haven't said what type of COPD you have.

in reply to Azure_Sky

Thank you for your reply. I have emphysema and chronic bronchitis :)

Badbessie profile image
Badbessie

In many ways how they stage people is very cruel. When I was told my stage it came as a complete shock because I felt so well. I was given no support and like you had a very black period emotionally. However after a period of reflection I thought I am still the same person I was before being told my stage, I still feel well, I can improve my situation. I have done a lot of reading and numerous people on various sites report that they have jumped stages either going up or down between tests. As I see it at times the numbers are just for the record keepers they do not reflect the true me. Take it one day at a time and try to build from there.

in reply to Badbessie

Thank you Badbessie :)

Cywebber profile image
Cywebber

Hi have you ever been testes for Alpha-1 Antitypsn genetic disorder? Im a zz

I have COPD IV

Your legs use up more oxygen in your entire body exercise them by walking.

If you smoke quit. Also any type of smoke like wood stove, bon fire avoid its not good for lungs.

If you have a cat have someone to attend to the litter box. The clay dust isnt good for anyones lungs really. Go more natural kitty litter.

If you garden allow someone else to use mulch, potty soil and other types of soil it has a chemical that weakens the lungs.

If your sick get to the doctors so they can give antiobotics.

Ive went with natural ways of cleaning supplies vs chemicals its less on the lungs. I use a lot of vinager, baking soda things like that.

For me I have a lot of triggers chemically, perfumes, pollen, pollution.

If you have Air conditioning this helps a lot vs a fan.

I also use humidifier with Eucalyptus oil especially at bedtime it keeps the lungs opened more and moistens the air.

Peppermint the strongest peppermint is good to have handy where ever you go in hard candy it helps to open your lungs. Plus it relaxes you.

Do a lot of research on natural ways.

Theres this one type of natural pill that slows progress of Lung Disorders and I cannot remember what it was called that my former specialists advised me on. Its in natural health stores all I can remember it starts with an A if I ever come across it Id know what it was.

Drink a lot of water also my doctor recommended a gallon a day. Keeping your body hydrated is a must and it also loosens and thins phlegm.

Enjoy your time with your family.

Laughter and lots of it helps.

Much prayer and peace.

in reply to Cywebber

Lots of great advice, thank you :)

Cywebber profile image
Cywebber in reply to

I finally found what I was seeking its

N-Acetylcysteine(NAC)

draxe.com/copd-symptoms/

Hopefully you can open this site up it has some good things to assist you with. If not please tell me so.

in reply to Cywebber

Thank you, I will have a good look at the link

twinkiepie2 profile image
twinkiepie2 in reply to Cywebber

Hi i think the medicine you are talking about is acetylcistine. My husband was put on this to help keep mucous watery, but when seeing a different consultant who asked what medication he was on he said it does nothing. My husband was given this when pulmonary fibrosis was diagnosed. But after further investigations he was told it was hypersensitivity pneumonitis.

What a cracking site this is, full of so many kind, thoughtful and knowledgable people. Thank you all so much for the support. The day before yesterday I spent many hours researching possible areas and was pretty chuffed about being so proactive and positive. Then yesterday, I flatlined and just wanted to drive off into the sunset. I had a long talk with my wife and two of my grown up children last night and have woken feeling a little more positive for the future. As well as my family I want to thank you guys and girls for that. Have a nice weekend and take care of yourselves, Brian 😘👍

in reply to

Ah Brian chatting with nearest and dearest always helps get rid of your problems I feel a problem shared and all that jazz...never hold on to your own thoughts that get you down ..being positive about things is the way to go have you decided on a move as yet... Try tai chi if you can lovely versions of some on you tube

Angie x

in reply to

Thank you Angie. No, I've never considered Tai Chi, but actually that sounds like a brilliant idea. I'll have to look into it during the week. The only thing we've decided is that we are definitely moving, just not sure where yet. Take care, Brian x

in reply to

Least you all have made a decision to move ...

I started tai chi when I was diagnosed with copd in January 17...its all about breathing and stretching would recommend it there's a few in my class have copd ..but I do it along with you tube hope you find something that suits you

Angie x

Badbessie profile image
Badbessie in reply to

We have all been there mate! take care for the better days to come.

in reply to Badbessie

Thanks Bessie :)

sunnyday22 profile image
sunnyday22

Hi remember 3 is just a number. It's how you feel that's important. You can still do all the things you did before

in reply to sunnyday22

Thank you sunnyday22, you're right, it's how you feel that matters, and how you feel impacts enormously on how well you manage your illness. I wish I could still do all the things I used to do! I'm happy just to be here taking care of my family for as long as I can. Enjoy your day :)

Winterhill1940 profile image
Winterhill1940

Good Morning Dear Brisara. Courage. You are not alone - large hug - we are all thinkings of you. maryo

in reply to Winterhill1940

Thank you so much Winterhill. Hugs right back at ya! Take care, Brian x

Annie10 profile image
Annie10

Oh Brisara things will stable themselves ...one day at a time...thinking about you take care and don't be to hard on your self...🤗

in reply to Annie10

Thank you Annie x

Tricity125 profile image
Tricity125

Depression. Guilt. Come on. Stay strong. Yea. As for feeling down. Where does it get you. Look at what you have got what you can do I know it's. Hard but. It's worth it. Do not let it creep in. It's try's its best. Be just. Over power you. Have to. As for guilt. What is it. You think country air will be better. And your right. You. And your loved one ne. Most. Relize. If it's for your. Health. Then it's a. Must. You. And your. Family will work it out brisara . Life. Is hard. For all. One way or another. Your lucky to have a family sorry but. There's a lot worse off. As. Your health. People. With disability some are so bad. Confounded to a bed a machine. Come on I know it's easy to slide. But. You must stay strong if you are the sick one in your family. Then. In a way. It's down to you to. Hold it together. You have time to sit and plan and think things. Over become a asset. To. Your family and not a burden. Iam sorry to tell you all this. But I think if you look at it honestly. Does who put there life's on hold because of other being ill. Is a major. Thing. Does why I love my independence . You or I push myself so much. Then I not reliant. Any one. It's late now. Take care. And. Onwards. And beyond. Bye. Paul

in reply to Tricity125

Thanks for that Paul, much appreciated.

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