Scarring on the lungs?

[Shezxx]

Has anybody any info on this. Anybody keep getting infections? Pulmomary fibrosis, but what can docs do to help?

[Billiejean_2]

Hi Shezz, like many people with Bronchiectasis, I have infections on a semi-permanent basis. They have scarred my lungs severely, completely covering my left lung to the extent that it's invisible on X-ray and not functioning any more.

What you can do about it probably depends on what your diagnosis is. If you have been diagnosed with IPF or PF, then there are two drugs which are used to slow down fibrosis. If the scarring is just from regular infections, then getting long term antibiotic treatment and prophylactic antibiotic treatment will help.

[Shezxx in reply to Billiejean_2]

Thanks for ur reply. Tbh i dont know the extent just tht i keep growin infections. Had a beating my lungs over yrs. They have tested me for bronchietsasis and they said shown no signs of it. I have asthma but they think theres another illness there tryin to figure it out. I just wondered if anyone in ere could help me so thankyou for ur reply i appreciate ur help x

[sassy59]

Hi Shez, Pete has scarring from sarcoidosis and COPD and has lots of medication to take plus nebulised drugs. He manages very well at the moment so l hope you get the right medication for you, xxxxx

[Shezxx in reply to sassy59]

Thankyou for ur reply. There still tryin to figure it all out.

[imelda16]

Hi shez there is a group on face book pulmonary fibrosis uk and they share lots of information about both IPF and PF also BLF have info on it and diagnosise also welcome.

[Shezxx in reply to imelda16]

oh thanks for this i shall take a look. x

[Hidden]

Hi. My hubby as the same thing and was diagnosed 3 years ago. He has done well and not deteriorated much in that time. They tried various meds to get his coughing and infections under control and he's doing well on syimicort. He hardly uses his ventolin now and has a lot less infections. You could get a transplant but my hubby is 72 and the cut off age is 65. There is people on here with Ipf that could tell you much more than me. Best wishes. xx

[Shezxx in reply to Hidden]

thanks for you reply. does he have a constant cough?

[Hidden in reply to Shezxx]

He has a bit of a cough but nothing like it used to be. That's why he went to docs in first place because he could t get rid of it. xx

[Shezxx in reply to Hidden]

Im glad its nothing like it used to be for him. Send him my best wishes x

[PastMeBest]

Hi Shezxx I have Pulmonary Fibrosis and have been prescribed Co-Trimoxazole a long term antibiotic and have been infection free for for over a year. I think this medication has helped a great deal.

I also take other precautions such as keeping away from people with infections, using antibacterial hand wash, eating healthily and generally looking after myself.

Wishing you better health.

John

[Shezxx in reply to PastMeBest]

thanks for your reply, its such a nightmare you catch everything going and get sick again and again. there still trying to figure me out but i know this is the cause of one of my problems.