We need your help with our health information!

Hi guys,

We’re reviewing our information on sarcoidosis and lung cancer and we’re looking for people to help with the review.

If you have any experience of either of these conditions, your views would be really valuable. We want to know what you think of the information: what you like, what you don’t like and how we could improve it.

If you think you could help, please go to blf.org.uk/support-for-you/... and fill out the short registration form. Then we’ll send you the information and a feedback form so that you can give us your thoughts.

And if you have a different lung condition, or if you have a child with a lung condition, you can still fill out the form. We review our health information every other year so we'll keep your details on file until we have something relevant to you.

Thank you!

Bethany

8 Replies

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  • I think it's great idea. I have seen progress being made on information benefits alsorts NOW we just have to do what doctors don't like doing and have bit of joined up thinking ESP if we what to get numbers down of lung dieased suffers.

    As we have seen in various publication DOCTORs are not interested in cause and only treat symptoms WE need to include DNA Immunity profiling because if you don't treat cause how can you treat the symptoms.

    And that in my opinion is making peoples conditions worse and lots of undue suffering as well as contributing to antibiotic resistance

  • Have registered Bethany. Xxx

  • Thank you!

  • I have filled in the form and look forward to helping as it is a very lonely, scary place when you have to have a big op and something removed and don't know what is going to happen next. All help gratefully received x

  • Thanks Jjanna. I'm really glad our health information can help at a time like that.

  • Actually I didn't actually have anything which is why I want to read what you do now .

  • Dear Bethany

    Your post "We’re reviewing our information on sarcoidosis and lung cancer" reads as though it is directed to people with both conditions. Do you mean sarcoidosis OR lung cancer ?

  • This is why we need your help Sarcoid1234! Yes we would like to hear from people with either condition. You don't have to have both. Thanks for getting in touch!

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