Hello I am 79 years old and suffer from fibrosis of the lungs and on oxygen 24 hours a day.
In May I was put on pirfenidone since then I lost 30lbs in weight had no appetite no energy and felt awful. In late June despite wearing gloves, hat and long sleeves and staying in doors I got a severe reaction and was covered in a deep red rash and swelling eventually my skin peeled all over my body. I have now come off and been put on steroids and feel much better getting my breath back eating again.
I wonder if anyone else has had reactions like mine