British Lung Foundation
36,021 members43,309 posts

transplant

hi folk just a quick one 20 week ago today i had double lung transplant and all i can say is wow its changed my life infact ive got my life back thanks to a wonderful doner and the team at the q.e. birmingham the reason i wrote this is if anyone is faceing a lung transplant and want to know whats what feel free to ask

30 Replies
oldestnewest

Good on you very pleased hope you're life is long and happy the likes of me is just to old now but just plod along enjoying myself as much as I can do once again very pleased for you so take care

Reply

thank you i have to that im 57 so maybe ya not to lod

Reply

old

Reply

Yes I am 67years old think they would give to younger person first

Reply

Absolutely fantastic. It's great to hear straight from the horses mouth so to speak. Congratulations on your new life. I am so very happy for you. How compassionate are the donors family. There are a few people on here waiting - I hope they see your post.

I wish you well

:-)

3 likes
Reply

thank you so much

1 like
Reply

hi ive yet to think of the words to put into a letter to the doner family the transplant team advise to wait a few months before writing to them because its a while to recover from op and you need to put all you effert into that but my wife jumped out of bed this morning and said we will do it this weekend so ill keep you posted if they will meet me ore not what do you say for this gift of life this chance to be again what i was before and better one thing is sure it wont be wasted

4 likes
Reply

How wonderful for you, Sibkiv What a gift, to have a second chance. Hope others waiting see your post. Please keep us updated on your new life. It must feel fantastic! 😊 Rubyxx

Reply

its all your dreams come true and a new life for my wife

1 like
Reply

So pleased for you. Great news. There are many here that are waiting for transplant and it will very encouraging for them to know of your success.

K x

Reply

Sibkev, thank you so much for posting this excellent news. I'm sure it will be greatly appreciated by a number of our members waiting on transplants. And isn't it wonderful that it's all gone so we for you and that you've got your life back.

1 like
Reply

That will be very uplifting news for those waiting for a transplant. Good to hear that it's all gone so well for you, you must feel well and truly blessed.

Reply

Hello sibkev . Congratulations!! What a marvellous thing. I would like to know about it if you're willing to share. Thanks.

Cas xx 🐞

Reply

ask me anything

Reply

Good news sibkev and wishing you well for the future. Xxxx

Reply

thank you

Reply

That's great news for those awaiting a transplant.

Enjoy your new life sibkev, all the best xx

Reply

thanks

Reply

Ex husband had one 8 years ago and going strong--its a miracle--Happy for you MmeY

2 likes
Reply

What a wonderful thing to happen to you, hope you have many years of healthy life ahead, thanks to the donor and their family.That is good of you to share your experience of transplant, take care

1 like
Reply

Great news - Thank you for sharing and so wonderful that you appreciate the wonderful gift from your donor and his/her family. All best wishes for a long and happy future.

Reply

thank you

Reply

So pleased for you, what a wonderful gift!

Reply

Hi Sibkev,

Thanks for the great news. I am not on the transplant list yet. However, if a pulmonary shunt is confirmed, then, I have been told that I Will be put forward for tests to see if I would be suitable for transplant. Of course, that raises the question of should I take the transplant route, with all of its possible side effects.

So my first question, I am sure there will be more, how did you decide to have a transplant?

Wishing you continued health, Tenter

Reply

thanks for well wishes i had no choise i had 4 months to live i made the mistake of waiting to long and got weak the stronger the better and i wld do i again in a heartbeat as for side effects beleave me you are so well watched its unrear

l im back to qe every week at first then every 2 now im on monthlys my advise is take it every time i see peeps up at clinic who have had it 90% say the same the qe did 39 tplants last year and 38 are still here and well ill take those odds anyday

3 likes
Reply

That is awesome news and am so happy for you.

Reply

Hi

Such great news for you. I am not on the list yet but have been told I will need one in the future. Its always god to hear stories like yours. I might have questions but will wait to ask them.

Marie

Reply

Hi sibkev , wow you had a (Double lung) transplant, and your doing ok? This is amazing ,your so brave. I see you were in a life death situation, that must of been terrifying? I have been referred for assessment and am waiting to hear back from Newcastle RVI. I was wondering how you'd feel about me messaging you with any question I have. There is something I would like to ask now if that's ok. If you haven't already been assessed for your transplant and you then get so sick you need one to live. Can they refuse because you haven't been through the process and put on the list. Thank Marie.

Reply

you can ask me anything u want or even ring me ill talk to you all about it i had no one to talk to or ask and faced it on my own with my wife as support she was stunning all throu . you have to go throu assessment for tissue type blood type etc its all nessersery also the surgen want as much info as pos about hart etc they told me a few weeks ago they did not think id get throu the op how ill i was but then said how wrong was we the main thing is train train train i know its hard but you come out other side so much stonger iwas in and out of itu in 2 days and out of hospital in 3 weeks with how ill i was that sorta shocked em

Reply

That's a great story, sibkev!

Reply

You may also like...