I almost certainly have Obliterative Bronchiolitis. This was caused by pulmonary emboli, (blood clots in the lungs). It seems that the clots in the tiny blood vessels damaged the small airways, (bronchioles). Which resulted in a repair process that caused scarring (fibrosis) around the airways. What is very different to your case is that mine is fibrotic, not inflammatory. I have no congestion, coughing, wheezing or mucus production. Which made me think that yours is an infection and/or inflammation, and therefore much more likely to respond to treatment. I do hope so.
Do you know what caused the doctors to make that diagnosis? It is usually done by High Resolution CT scan, which can show different patterns: in my case there was a mosaic pattern that indicated air trapping. Whereas other types of Bronchiolitis can show a "tree-in-bud" image.
The problem with Bronchiolitis generally is that because the affected areas are deep in the lungs the Spirometry results can be fairly normal. And, unfortunately, this can make the doctors not take it seriously.
Would love to hear more about your experience.