My husband diagnosed with fibrosis( not IPF) is in hospital(Brompton). Lung function is 48%. Was 60% 1,5 years ago. CT scans show only slightly increasing of fibrosis. They said its infection, but the mucus tests always were clear. His doctor treated him with antibiotics, no improvement, he is worse and worse every day. He was on 2 lts of oxygen 1 day in hospital and it was giving him sats 96, today he is on 5 lts which give him only 90-91 sats. He is walking on 15 lts of oxygen and his sats are 70th, so he walks 10 metres and stops to recover. Something is progressing very fast and he feels worse and worse. They changed antibiotics, no results. They r talking about discharging him with antibiotics for home use. I thought Brompton would help, but nothing good happens😢
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