My dad broke his hip last August, stopped work and was finally diagnosed with COPD and has gone downhill ever since, with a more recent diagnosis of IPF. He has pretty much been house bound and on Oxygen 24/7. After battling water retention, his legs, arms, back and tummy were fit to burst, a constant cough and breathlessness just from having a drink they finally admitted him to hospital last Monday. He is in the coronary care unit (he has a history of heart attacks/angina), where the nurses are amazing and have tried relentlessly to help him. 13l of fluid have shifted, but they are fighting a losing battle and dad has had enough. The consultants are finally listening to him and have started palliative care, upping his morphine and trying to reduce his Oxygen. He was getting confused from a build up of carbon dioxide. Writing this down is like therapy for me and I thought I didn't have any tears left, but they keep on coming. This is such an awful, cruel, unknown about disease. We wouldn't let an animal suffer like this. We have fought all the way to get dad the care and attention he needs, but what about those that dont have a pushy family behind them, fighting their corner. The Drs and nurses are amazing, but the system is failing them and the patients. David Cameron and the rest have a lot to answer to.
Sorry, deep breath, rant over. I read this forum a lot and can identify with what so many of you are going through. Stay strong and keep on fighting x