I would just like to get it out there before I start that I love NHS, and after from the incompertant doctor I saw the first time I was taken to hospital in 2011 my treatment has been brilliant.
When I saw my consultant the first time she took a full history from me including my slight build and weight, I was poked and prodded and tested within an inch of my life, she promised if it went to transplant she would fight my corner.
Then I seemed to be relegated to one of her minions which is fine if others needs are greater than mine, he was nice enough but didn't know anything about me so we were off and running and with the tests and questions. He put me forward for transplant and I wasn't even considered, they told him not me I wasn't suitable because of my size.
Yesterday I had an appointment and I'm relegated to one of his minions, which again is fine they all have to learn. But what was the first thing she said, your BMI is very low we need to work on that. So we were off again. Then she starts about transplant again
I wanted run to the roof if I had the energy and scream I am little because I just am, not because of my illness.
What does it take to convince people, she obviously hasn't read my notes or she would know I have my oxygen levels checked and nutritionist come and 6 months. And that I was turned down for transplant because of my BMI.