Cryptogenic organising pneumonia - Lung Conditions C...

Lung Conditions Community Forum

56,005 members66,632 posts

Cryptogenic organising pneumonia

Deaks profile image
8 Replies

Hello everyone. So fed up. Was in hospital for a week beginning of February diagnosed with the above. Still off work still very weak. Tired all time. Steroids being weaned down. Feel like I'm never going to be back to normal. Another sicknote for three weeks. Does this condition usually linger and have long lasting damage. I'm 47 usually fit and healthy and now I've been knocked for six

Written by
Deaks profile image
Deaks
To view profiles and participate in discussions please or .
Read more about...
8 Replies

Hi. I'm in the same boat as you, I'm 53. I was admitted to hospital on the 4th and was out by the 8th. I feel able to move about and do a few things but I tire easily. Still have chest pains, sensitive airways etc. It's going to take some time to get over what is a serious major illness. Don't rush it. A month convalescence isn't unreasonable but it may take a little longer. Don't rush it.

in reply to

Remember all your reserves have been used to fight off the illness. You need to build yourself up again .... plenty of vitamin c.

Deaks profile image
Deaks in reply to

I know. Just so fed up. Can't wait to get back to normal

Deaks profile image
Deaks in reply to

I've been given another note for three more weeks. I bet you didn't think something like this could floor you. Have they said if any long term damage x

in reply to Deaks

Hi, no. Not a word about long term damage.

Salfordlass profile image
Salfordlass

Hi

I remember feeling exactly the same....like I would never get well again. Unfortunately it can take many months. If you read up on it the average recovery time is 6/9 months.

Keep cheerful

Sheila

Deaks profile image
Deaks

Hello. It not nice is it. How long did it take you to do every day things without feeling wiped out? They don't want me to return to work until I'm 100%.

Take care x

Dedalus profile image
Dedalus

Hope you feel better soon Deaks.

Not what you're looking for?

You may also like...

Cryptogenic organising pneumonia

Hello. I'm new on here. Just been told I got cop after nasty illness and a week in hospital. Still...

Cryptogenic Organising Pneumonia

Hi I’ve just discovered this web site and thought I’d join if only to learn and share and maybe...

Cryptogenic organising pneumonia

Hi, I've just recently been diagnosed with cop and have started steroids after finishing a course...

Recurrent Cryptogenic Organising Pneumonia COP

I have had 2 attacks of Recurrent Cryptogenic Organising Pneumonia COP in the last few years. My...

Organising pneumonia

Hi all Today I have had the results of my second lung scan. The first showed possible...