Wow, so many supportive comments, Thank you! I spent so much time looking for information in the wrong place ( facebook, search engines, desperate to find answers, often scaring myself) and all my mum would say is, she will be okay, I would often feel quite infuriated as I was looking for something a bit more constructive and personal to my daughters health, I presumed my mum was the font of all knowledge and would diagnose her, even though I knew that would never be possible but I guess when your desperate you go looking for answers anywhere, ie FB. Unless you have gone through something like we are going through it's hard to advise, sympathise let alone empathise. I feel this site will be the 'hug' and the 'agony aunt' I so desperately need at the moment. Thank you once again for all the lovely comments.