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British Lung Foundation
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emphysema and exhaustion

I was just wondering if most people with Emphysema/COPD suffer with exhaustion. I am also always cold

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I get awfully tired, yes. I have a little energy in the morning, but by 2 or 3 in the afternoon all I can do is sit. It takes a lot of energy to breathe. Also...I've been colder this winter than last, and we're having a mild winter. I just dress accordingly.

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Fatigue is a side effect of copd, but does not have to be that way. I take cannabis oil and no other medication, going from stage 2 moderate to stage 1 mild. I can now cycle up to 30 minutes at a time, take the dogs for a walk, work a 12 hour day etc. Cannabis is natural and was used for medicinal cures centuries before aspirin came along.

Merv

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Hi Merv I've just been prescribed my 4th lot of antibiotics in 5 months (clarithromycin ) not had these before I should have started these this morning but I'm so reluctant the side effect look horrendous. Did you gradually reduce your meds when you started using cannabis, do you take it in oil form and where do you access this.? I'm very interested in trying this as an alternative I hate taking antibiotics they just really mess your body up .

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My doctor suggested i try not taking any medication after i had gone from stage 2 to stage 1 ( he does not know about the cannabis oil). I had taken a dosage of spiriva xmas eve, had my test xmas day and not taken anything since.

If you go to " treating copd with cannabis" on facebook. Join and then read the pinned post very carefully. Also read the file section, loads of info.

I cannot tell you where i get the oil from, but if you read the pinned post carefully it is very self explanatory.

An alternative is to grow your own, seeds are very cheap.

I currently purchase the oil but also trying to grow my own. My first crop is a failure, so far but 70% of first time growers fail. Go to ilovegrowingmarijuana web site on google, loads of info. They can supply everything you need.

But, be warned, you cannot buy oil for copd on the internet legally. There are many companies promoting cbd oil, which is good for some things, but no good for copd.

Good luck

Merv

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Thanks Merv, I live in Spain and I believe it's allowed to grow up to 3 plants.Ihope you continue to improve take care

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were do you get the oil thanks

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go to " treating copd with cannabis" on facebook and read the pinned post. Plus lots of info in the file section.

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Where do you get your canabis oil from as i believeits not prescribed in the uk

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go to " treating copd with cannabis" on facebook and read the pinned post. Plus lots of info in the file section.

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Amazing that I live in a country that champions tobacco and alcohol but not cannabis that has proven health benefits for MS sufferers etc?Take care

Malinka

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how to you take it? is it a pill or?

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It is oil taken from the cannabis plant, you then mix that oil with extra virgin coconut oil, put into suppositories and take 3 times a day.

Go to "treating copd with cannabis" on facebook. Everything you need to know is on there.

Merv

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I joined this and will try to understand it thanks for sharing with me

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i feel the cold now even with loads of clothes on , never use to as was always use to working in the cold all day every day

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Know what you mean. I am always cold no matter how many layers. Looking forward to our so called Summer.

Look after yourself.

Malinka x

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COLD AND TIRED.

yes, i feel so tired I sleep two days solid then stay awake two nights crazy.

my feet feel like I have socks on all the time and feel wet and cold all the time horrid

part and parcel I think

Shirley​

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Yes I am a lot more tired now than I ever used to be pre copd. But then maybe part of it is getting older as well? You also tend to feel the cold more as you age too. x

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Hi Fluke13

To put it bluntly... I am permanently knackered !!

I still am managing, with in reason, to do most things, but l am exhausted later in the day.

It's a tiredness l can't shake off, l have to sleep...so now I go with the flow, l do what l can when l can, and take to my beloved recliner when l need to 😂.

As for cold feet, if my husband is sitting on the sofa with me, l stick them up his jumper on his warm stomache 😂😂 Sheer bliss 😂😂and true love on his part for putting up with it.

Buy yourself a pair of Heat Huggers Sox. The genuine ones are about 3 tog and are about £7. Well worth the money. I only wear them indoors as l find them to thick to wear with shoes or boots.

Got to go...my recliner is calling !!!

Velvet xx

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Yes. Fatigue goes hand in hand with COPD. I'm mid flare up at the moment. Totally fatigued and can barely walk around the house. I just used oxygen for 10 minutes and it's improved matters a little.

It's scorching hot here in Australia so I'm not having problems with cold feet, though they are cold to the touch most times.

Rug up and try to stay warm.

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I find my hands are always cold I use a wheat bag few minute's in the microwave helps I am tired by lunch bed at 12pm but still wake at five that's copd

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I'm 78 soon and I too have COPD, am on oxygen 24/7 and also feel the cold. I wear thermal vests and thermal long-johns in the winter which help a lot and also have the heating on 24/7 which does get expensive but there again, I don't think I'd be alive without warmth. I find myself sleeping well at nights and also have an hour in the chair after lunch. Generally, I believe that my health has improved noticeably since I started looking at my diet and substituting some meals, breakfast usually, with a fruit smoothie.

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I try to get chores done by mid-day as I then start to slow down and need to rest. I only do one big thing a day now like shopping and putting the stuff away or bed making. Hubby has taken over the hovering as can't push the hoover around anymore.

I sometimes get a bit fed up when friends and relatives who don't understand why I can't just get up and go anymore when they say lets do so and so now. I am learning to say no but I do wish sometimes I had a barometer on my forehead which showed how much energy I had left to do exciting things like cook tea or be dragged out of the house to buy a new door bell.

Keep well everybody.

Sue

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Yes, like you, I get really worn out. I spent the whole of January just pottering around

in doors and resting and sleeping. However I have started walking again and have even been to the gym twice this week.

I also feel the cold but when I am able to walk or exercise I warm up.

Having emphysema/copd is very frustrating and it is hard to walk when you are exhausted...sort of ' Catch 22'.

The way I cope is to rest when worn out and make the best of when I feel I have more energy.

It is such a frustrating illness to suffer from and sometimes hard for others to understand but I feel that I am taking control of it a bit.

I am 63 and live alone so it easier for me to do my own thing.

I hope this helps you a bit.

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I'm so glad you asked that. I can sleep around the clock, get up for a few hours and then nod off again. I was starting to worry that I was getting depressed. But I don't feel down, just exhausted. It's hard for me especially because I was brought up to believe that over-sleeping was a sign of worthlessness. I think I'm finally getting over that, but it's meant breaking ties with my parents because they're so negative. It takes us with lung disease many times more energy just to breathe. I can't find the exact reference right now, but I believe it was about ten times the energy of a healthy person. So of course we're tired! Now I've decided to try and not to worry about it. As long as I can make it to my appointments, I'm going to be satisfied! I will just have my housekeeper come in more often and stop worrying about doing that on my own. About the cold - I keep a big heating pad by my chair and use it when I feel chilled.

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I thought it was my copd mild that made me tired but it was that I had anemia went on irion tabs and feel great you should get blood test c if u have anemia

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I have end stage emphysema and the slightest of activity makes me sob. Not sure whether copd has made me feel colder more as i have always had cold hands and feet. However i have noticed my chest gets colder quicker which increases my sob

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Me too, However, I only have a FEV of 15% and am on 1 litre oxygen virtually 24/7. I do feel the cold. I also exercise as much as I can: gentle yoga, lift weights just 2 kg. and a little walking. I too, am pretty tired in the pm and usually go to bed about 9:30. I also use a NIPPY (keeps airways open while you sleep) as I am a CO2 retainer! Also don't sleep too well so sometimes use sleeping pills. I feel we need to push ourselves to carry on.

Take care

Malinka

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what is a nippy? I was told there was nothing that could be done for co2 retention.

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I retain c02 and use a nippy...its a machine that i use when im sleeping and its lowered my co2....

If you retain c02 be very careful what meds you use as anything that makes you sleepy can raise your co2

kch.nhs.uk/Doc/pl%20-%20727...

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It is a machine that forces air in and out of your lungs while you sleep. It comes with a full face mask or nasal type. It is supposed to get rid of the CO2. Personally, I don't find I sleep unless I have a sleeping pill or half a Lorazepam. However, when I have my blood gasses checked at the hospital the readings are normal. I never felt drowsy and was told I was a borderline CO2 retainer. Hope this helps?

Take care

Malinka

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Malinka as a c02 retainer myself my consultant will not allow me sleeping pills or any other type of meds that makes me sleepy as it slows down our breathing when we sleep and raises the c02 levels

I begged her for a short supply last year and the stubborn woman wouldnt give in...shes about 4ft 10 and tiny but she scares the life out of me :)

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Maybe it is because I have severe emphysema and a lung FEV of only 15% that the medics assumed I might as well have the pills as I won't be around much longer. Naturally, I will prove the wrong!

Take care.

Malinka

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yeah me too honey but im 20%....as long as your coping and doing as well as you can ..thats the main things x

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I am with yu on that. Yes we will prove them wrong. It is so disgusting when the Lung Doc wants to advise e to get in touch with Hospice. No way do I need that. You don1t either.

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Well, they haven't gone that far re hospice. I know what I would tell them if they did! I just wish these medics would admit their ignorance when it comes to COPD and start listening to us. I guess Hell will freeze over first. He hee!

Take care

Malinka

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I was suffering with exhaustion and feeling cold. I was then diagnosed (from blood test) as being anemic, iron deficient. I am now well into treatment for this and have felt better each day.

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Thanks for all the replies guys. I'm 41 and the level of exhaustion is frustrating. 2 years ago I was running 2 miles a day, now after a few hours of being awake all I want to do is go back to bed. I've had blood tests and they were fine. Comforting to know I'm not alone.

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HI I'm Diane i have copd and get very exhausted I thought it was I'm getting older but if you feel that way it not just my age I'm 50 on Thursday so I'm getting on but not so old to get very tied quick

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