I have been sitting on this since Monday but have decided to share it with you because I am still so angry and upset. Some of you know that I am back nebulising ceftazidime again for my bronchiectasis. It is almost impossible to find outside the hospital. Tesco at Stratford have managed to get it before and I have a good relationship with the pharmacist so took the script there. A new young female pharmacist took the script, listened to the problems, then came and called me. She then proceeded to say that she also had bronchiectasis, diagnosed six months ago and that she didn't produce. As it was obvious that I did because I need the drug, She was in danger of being infected by me!! !
She was standing back from me as though I had crawled out of a sewer. In that situation and in the hearing of other customers I wanted the ground to open up and swallow me. Being so shocked and basically a polite person, I didn't retaliate or make a fuss, which I suppose I should have done. When I got into the car I just burst into tears. Coming from a so called health professional who is there to help people, this was deeply insulting and shockingly hurtful.
I told her that this was nonsense and that I have never infected anyone. I told her that she is far more at risk from those seeking remedies for their colds and viruses. I asked her who told her this and she told me that a doctor at our local hospital, not the consultant , had told her not to go near her cousin who has cystic fibrosis if she was producing. As you probably remember, I refused to go to my local hospital when I had an empyema in feb because experience has told me that they know nothing about bronchiectasis.
This misapprehension seems to be creeping into the psychi of the lower levels of medical staff. When I was in hospital in feb some of the younger nurses did not want to carry the (sealed) pot with a sample in it. The consultant doesn't care. She looks at countless samples every week. Likewise, the lab staff, whom I have known for years, have never caught anything from us. Likewise, when I was struggling to do my last breathing tests I had to cough into a tissue. The tecnician said ' oh I hope that isn't infective!' and I had to carry on trying to do my best when I just wanted to leave the room. We don't sit there and cough copious amounts of gob over people and as you know, the bacteria are dangerous to us because they are inside our bodies. If we were a danger to others it would be obvious because our partners,family, children, friends etc would catch these bugs from us. They do not! But we catch viruses from them which often set off exacerbations.
We have enough to make our lives horrible without such ignorant attitudes and behaviour making us feel dirty.
We need to find out how this attitude is insidiously creeping into the mindset of health professionals before it spreads into the wider society and produces general discrimintaion that will make our lives even more difficult.
Thank you for reading this. I have been very tearful over it and feel a little better for having a rant.