We have been left behind in the wake of the reformed new NHS, all the rhetoric, parliamentary patient day and promises of a Highly Specialised Service for A1AD patients all seem to be lost, nothing at all is happening to help these very ill and desperate cohort of patients in the New NHS. Appeal to Sarah Watson and Professor D A Lomas please doing nothing is unacceptable. Patients are desperate they need these services and they need augmentation therapy in accordance with ATS/ERS, Alpha 1 Foundation and all advocacy groups recommendations. Picture below Margaret Millar 52 left with no immune system open to all pathogens, community acquired pneumonia, Sepsis, colds, flu. I attended an Alpha 1 clinic in the UK for 5 years, still no therapy, A1AD patients need agumentation therapy to inhibit Human Neutrophil Elastase HNE. Almost 10 days out of hospital I am burning up my mouth, insides my whole body systemically and totally obliterated.
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