Thrax article on improving care for I... - Lung Conditions C...

Lung Conditions Community Forum

56,005 members66,632 posts

Thrax article on improving care for IPF in the UK

RFPM profile image
RFPM
4 Replies

Thorax (a journal for health care professionals) has just published an article on improving care for IPF in the UK from primary care to specialist centres. It says that people need information and support in line with our BLF patient charter. You can find lots of IPF resources on our website blf.org.uk/ipf You can read the Thorax article at thorax.bmj.com/content/earl... Ruth, from the BLF

Written by
RFPM profile image
RFPM
To view profiles and participate in discussions please or .
4 Replies
hajoed profile image
hajoed

Thank you for this. Diagnosed early this year but was not advised as to the speed of this condition. I was signed off, with an extra pump Atrovent to clear the mucus. It works very well. I think I shall go to my GP and ask her to look at the Hospitals report to check that I have not misheard the Consultant. I hope I have.

Just made that call and will see her next week.

Jane

RFPM profile image
RFPM in reply to hajoed

Hi Jane, the diagnosis is really complicated, so I'd really recommend going to speak to your GP and also if necessary phoning up your consultant. Do let me know how you get on. You can find out more information about IPF at blf.org.uk/ipf

hajoed profile image
hajoed in reply to RFPM

Thank you. I booked up................but chickened out. I will book again and I will go.

RFPM profile image
RFPM

HI Jane, There's lots of different types of pulmonary fibrosis, with lots of different types of progression. It is important to make sure that you have a clear diagnosis. IPF should only be diagnosed by a ‘multidisciplinary team'. This means that a group of expert health care professionals should decide if someone has IPF, rather than just one individual health care professional. If you'd like to talk to someone about anything then please phone our Helpline on 03000 030 555.

Not what you're looking for?

You may also like...

The BLF have a featured IPF article on the Huffington Post website today, calling for more awareness and support of the disease.

The BLF chief executive Dr Penny Woods has published an article on idiopathic pulmonary fibrosis...

What do you think about the new quality standards for IPF?

Hi all, You may be aware that guidance about different treatments and the standards of care that...

IPF - Acute Exacerbation in UK

Can anyone from UK help me out with following question about acute exacerbations in IPF?. I live...

IS THERE ANYONE WHO HAS IPF WHO WRITES ON THE BLOGS

i joined the BLF a few months ago and i notice that it's mainly carer's who keep in contact is...

Re. BLF article on IPF

A very good article but once again there seems to be the voice of doom about it, life expectancy...