Thrax article on improving care for IPF in the UK

[RFPM]

Thorax (a journal for health care professionals) has just published an article on improving care for IPF in the UK from primary care to specialist centres. It says that people need information and support in line with our BLF patient charter. You can find lots of IPF resources on our website blf.org.uk/ipf You can read the Thorax article at thorax.bmj.com/content/earl... Ruth, from the BLF

[hajoed]

Thank you for this. Diagnosed early this year but was not advised as to the speed of this condition. I was signed off, with an extra pump Atrovent to clear the mucus. It works very well. I think I shall go to my GP and ask her to look at the Hospitals report to check that I have not misheard the Consultant. I hope I have.

Just made that call and will see her next week.

Jane

[RFPM in reply to hajoed]

Hi Jane, the diagnosis is really complicated, so I'd really recommend going to speak to your GP and also if necessary phoning up your consultant. Do let me know how you get on. You can find out more information about IPF at blf.org.uk/ipf

[hajoed in reply to RFPM]

Thank you. I booked up................but chickened out. I will book again and I will go.

[RFPM]

HI Jane, There's lots of different types of pulmonary fibrosis, with lots of different types of progression. It is important to make sure that you have a clear diagnosis. IPF should only be diagnosed by a ‘multidisciplinary team'. This means that a group of expert health care professionals should decide if someone has IPF, rather than just one individual health care professional. If you'd like to talk to someone about anything then please phone our Helpline on 03000 030 555.