Ambulatory Oxygen POC update - Lung Conditions C...

Lung Conditions Community Forum

56,005 members66,634 posts

Ambulatory Oxygen POC update

10 Replies

Good news

I am just letting you know after being initially refused a poc (portable oxygen concentrator) I am now going to receive one. I have had to fight to get one, but as I was unable to manage the cylinders and couldn't have liquid oxygen because I live in a flat and no where outside for the tank to be stored, I will now get one.

I also involved my consultant although was told by respiratory team it is not his decision to make! but theirs.

Also they said they do not give them out in the north west.

I am fairly active and spend a lot of time out of my home, maybe that is why they were unable to refuse me a second time.

A successful outcome and will receive delivery next week of a poc.

The ability to reply to this post has been turned off.

10 Replies
Mocarey profile image
Mocarey

Good news. Glad you getting your poc. M x

coastal1 profile image
coastal1

Great news . It's a pity you had to had to push so hard when there was an obvious need. I think we are all probably a little afraid of getting on the wrong side of health care professionals . Well done!

Bengunn profile image
Bengunn

Hi Roseuk.Great news about your poc.Congrats on a great fight.Do you know which one your having.Good luck.Bengunn.xx

in reply to Bengunn

I think it will be the Inogen G one, will confirm when I receive it.

Hi Rose,wonderful news,glad you didn't let the b...... grind you down,congrats,Love Wendells xxx

Joolsh profile image
Joolsh

Very pleased for you, will make such a difference I used to have home fill but require 6litres now so I have liquid, getting out if able makes such a difference to your life x sometimes it feels like you are fighting for everything and on top of that your fighting everyday for your life, be strong x

peege profile image
peege

Well done you for sticking to your guns. How very dare they want to discourage you in getting out and about.

Bravo!

happyfeet59 profile image
happyfeet59

I agree peeg.

I think sometimes it is about money. My new oxygen nurse knocked my ambulatory litreage down from 8Lpm to 5Lpm, she said because she'd 'never had anyone on such a high dose before'! I tried for about a week at the lower dose but couldn't get very far so I phoned her up and she told me to put it up if I needed to. I now move it between 5 and 8Lpm when out and about depending on whether I am sitting or strolling with purpose. I really wanted to be able to operate at the lower dose because my cylinder would last longer, but I was struggling. I often wish it would spontaneously right itself and I can get back to normal. Guess we all dream.

dartgirl profile image
dartgirl

Hi Roseuk, My husband's oxygen nurse has told us we cannot get a POC on the NHS, he has an appt at the end of the month, so we will ask again, we are also in the north west.

in reply to dartgirl

Do you have somewhere outside that can store a large tank of liquid oxygen? they may explore this option first, as you can then fill a small flask from the large tank with oxygen, for ambulatory needs. Also you have to be out and about a lot, to be considered for poc, I am out each day for lengthy periods. Also I was unable to manage the bulky cylinders. I live in a flat so had nowhere outside to store the tank. If you think you fit the criteria then fight for it. Your MP might help or your Consultant. Good luck.

PS I am on 3 ltr pulse rate.

The ability to reply to this post has been turned off.

Not what you're looking for?

You may also like...

What are the rules for receiving a poc (portable oxygen concentrator) for ambulatory oxygen/

I have been prescribed oxygen cylinder was told by my consultant, when I explained my difficulties...

ambulatory oxygen

a few quick questions to those of you who use the ambulatory oxygen: how long did it take between...

High flow conserver for ambulatory oxygen

Hi all, I've just had a visit from my oxygen provider, they have given me a new toy for my oxygen...

Virgin Airways don't allow POC batteries on aircraft

Hi **Information Travel Alert!** I'm flying Virgin Atlantic to the US tomorrow, and they've told me...

New to needing Ox on planes - any POC advice?

Hi - I'm new to the forum, so hi everyone... I failed my "Fit To Fly" test last week so I now need...