I am getting a pacemaker and defrillator on Wednesday, cant wait till it's over, i've never been anywhere near an operating theatre in my life, but that's beside the point.
My problems were discovered 2 months and i was immediately put on the 2 litres of fluids a day. I've managed to keep to it so far but some days i really struggle and find myself going to bed thirsty as i'm scared to break the rule.
Just how strict does it need to be? Will i have problems if i go a glass of water over the limit?
I know no one can tell me it's fine to go over but i'm just wondering if anyone has any knowledge of what might happen if i do. I have had occasions where i've came very close as my record keeping wasn't great.
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Telboy1162
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In addition to my heart issues I was found to have a fatty liver (non alcoholic) which lots of people have without realizing. I was advised to drink at least 2 litres of water a day but don’t think there is an upper limit ! I’d be surprised if any condition required you to drink exactly 2 litres; I would suggest you speak to your doctor to clarify.
Sorry, i worded that wrong. What i meant was a maximum of 2 litres a day. I know why they tell you that, I'm just not sure if you can go a bit over and not have complications.
I have been told 1.5 litres at a push 2litres. But I get Migraines if I don't drink enough. But currently I am on a virtual ward so have to measure myself daily. So I would speak to your Dr but weighing yourself daily would tell you if you are retaining fluid or not. I drink as much as I need sometimes that's 2.5l to 3 l my drs said if my weight shoots up by 2kg speak to gp for water tablets but if my weight increases I will first try restricting fluid intake back to the recommended amount
I think 2 litre really is the limit but not all of us are the same I average 1.5 litres a day and found the swelling in my feet and ankles goes quickly
i am on 1.5 litres fluid per day and have been told to check my weight every day -to ensure i do not put on more than 3lbs in three days as this means fluid is going into my lungs
Thanks for your reply Ardgay, yes i know why you get put on the limit. Before i was discovered to have HF i got fluid on the lungs as well as swollen ankles.
I was told max 1.5 litres a day at first to avoid fluid on my lungs which I previously had and had spread to the lower half of my body. Now that my EF has improved and the fluid gone and my HF conditionis now stable due to my meds, they have advised me that I no longer have a max.
Good morning Telboy1162. Firstly regards your Pacemaker procedure. I am not at all keen on Hospitals and operations either but the Pacemaker procedure although it's done in like a operating room to me it's not an operation. You should be asked if you want sedation to make you sleepy. But I decided I either wanted to be awake or asleep. So I had no sedation which means quicker recovery. They numb all your shoulder up before starting and I never felt the incision to implant my pacemaker. All I felt was a bit of pushing and prodding to get the pacemaker in place. The whole procedure takes about an hour and it's all done. Hope everything goes as well for you. Take care and let us know how you get on. Brian
Morning and thanks Brian. I've been thinking that given the option, i probably would rather not be sedated. I'm not sure if that happens in Edinburgh Royal though. I'll be delighted when it's done and hopefully feel the benefit of it all very soon. Will keep you posted how it goes.
I know we all react differently to procedures but I was fine and there's a nurse by your side talking to you throughout the process and making sure your ok. I was straight out of bed once back on the ward and walking around. You will have to keep your pacemaker side arm below your shoulder height for 6 weeks and it might be uncomfortable to sleep on that side for a month and you will have to tell insurance and dvla if you drive because depending on your reason for needing the pacemaker it can stop you driving for a while. Regarding your drinking allowance I wouldn't think a little over your limit is going to hurt at all. Take care. Brian
I am in the same boat with my feet and ankles ankles swelling all the time. Told to double my Spironolactone and not drink more than 2 litres so I buy 2 litre bottles of water and make all my drinks from it. Not had a problem since
I had to Google that stuff, Spironolactone, Doublef, never heard of it. Mind you, i got kept in 8 weeks ago when they did an ultrasound scan and realised i had serious HF and a blood clot to go with it. I left the hospital 3 days later on 5 drugs i hadn't heard of then either. Namely Furosemide, Bisoprolol, Apixaban, Dapagliflozin and Candesartan.
Fyi all men taking Spironolactone, my consultant recently advised me to swap to epleronone as Spironolactone can give us moobs. Be worth checking this out. I did and my cardiac nurse and team agreed so hopefully I won't need a bra in the coming months and years. !!
I take Furosemide for getting rid of fluid it only lasts 6 hours and before i had a fluid restriction i was drinking heaps of water and running to the toilet a lot..
I am on 2 litres a day and have gone over on plenty of occassions but i do keep a close eye out for Oedema unfortunately we all have different circumstances and it is very hard to say as to whether you can go over your limit..
I would go to a doctor to find out where you stand i have a reasonable E/F too but some days i will drink 3 litres or so and i am on a 2 litre restriction..
Hi I am in general a thirsty person, I am not diabetic just always thirsty, I carry a bottle of water everywhere with me. When I had heart failure I struggled badly with the 2 litres and my consultant raised it to 2.5 as I didn't have any problems with fluid retention. I done my best to stick to it but I didn't find it easy, I did check my weight and watched my ankles for any puffiness. I never had any problems at all so I suppose I was a bit lax with limiting my water. Char
Dr barbera oneill...look up her videos...she says we use roughly 2 and a half liters water a day more if you excercise....and she suggests put a tiny bit of celtec salt into drinking waters to help yoir body cells accept the water
In the beginning yes. the extra fluid is putting extra stress on your heart. Your doctor knows. Give it some time. I have been thru it. Youll get to know if your holding on to water. Its a fine line.being dehydrated is no fun. But for now, follow orders. I am at a point now, if I' thirsty, I sip. It does get better, we get better! Be Well! 🥰
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