Check up shones syndrome : So my check... - British Heart Fou...

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Check up shones syndrome

Mdea1988 profile image
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So my check up went well, no new changes since last year after discovery of silent heart attack, he suspects it may of been a result of my op in 2018 when I had my 2 mech valves done followed by strokes also. He said it is a possibility of needed a pacemaker at some point in the future, I'm 35 is this something anyone else has this young? I know we are all diffrent and each have our own experiences etc.

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Mdea1988
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3 Replies

Glad your check up went well. I don't have alot of experience with pacemakers. I don't know if I may end up with one, as my condition, epsteins anomoly has caused right bundle branch block. And you can get arrhythmias. Any way enough of me. I did work with a lad who had to have an ICD. He was mid 30s but they could not work out what was happening to him. But it does not stop him doing stuff. But it is hard to keep your mind off these concerns. I assume you are being looked after by an adult congenital team. And I find the sommerville heart foundation good to be a member of. I hope your latest check up has helped lesson the worries. You take care.

Blearyeyed profile image
Blearyeyed

I have a few friends whom I met at Uni whom had them in their early 20's because of silent HA and previously undiagnosed heart conditions like yourself.One was very athletic and after the problem was fixed and ICD was fitted when recovery was over he was back out on his bike , and he's still biking today.

Heart problems in young people aren't as uncommon as people think , including the odd Doctor, especially if it's something that is genetic or could have been present since childhood, but what all the people I know whom have had mechanical heart issues before 40 had in common was a great success rate and a new lease of life.

Wishing you the best of luck and please keep us posted, Bee

Hi, I have to admit I've not heard of Shones Syndrome so had to look it up. You've been through quite a lot, so, its always good when a check up goes well and doesn't throw up something unexpected. I dare say you've had that happen.

I didn't have my first Aortic Valve Replacement until I was 33, but, Pacemaker wise I was a bit older at 52, and that was due to complications in my 2nd OHS acquiring Complete Heart Block. What I would say is, if you need a PM take it with both hands, it can only be of benefit. I've had mine for 10 years now and to be perfectly honest, I don't notice it, but, its a vital part of me that keeps my heart going.

Take care

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