NM Rubidium 82 Test

[Winter4519]

Hello everyone just an update well I had a a NM Rubidium 82 scan on the 21st July 2023. I received the results. No blockage in my arteries, however, it did show that at rest my EF was 14%at stress level 20%. I am not sure if this is at a dangerous level as in 2019 I had a EF reading of 30% to 35%. and in February 2023 had a EF of 20%-25%. My consultant is in the process of arranging for another ECG. I am getting worried as nothing as been said as to the next steps or what is to happen. I recently had a test where I had a camera inserted down my throat as I was experiencing trouble swallowing. although the test came back negative I was wondering is this some of the symptoms due to my HF. I am off to collect my prescription for my increase Entresto from 49mg/51 to /now 97mg/103mg.

[BeKind28-]

Hello

I am sorry I cannot help with your results but understand why you would feel worried as most of us do in these situations

I wonder if you have found out anymore since you posted ?

I do hope so and hope you hope you are feeling more at ease than you were

Hope you are having a lovely weekend x

[Winter4519 in reply to BeKind28-]

Thank you for replying. I am waiting for an appointment for another up to date ECG. Once this happens I will let you Know

[BeKind28- in reply to Winter4519]

Hello

I hope your appointment comes soon and shall look out for your update x

[Winter4519 in reply to BeKind28-]

Update thank you for your reply, I had my myocardial scan on the 21st July 2023. No blockage detected however, it did show that my LVEF of 14% at rest and 22% post stress. which suggest a worsening. My last ECG in February 2023 which at the time showed a LVEF of 20% -25%.

I was told that this a myocardial scan is not as accurate so another echocardiogram as been arranged for the 16th September 2023. I will update.

Hope everything is well with you.

Kind Regards

[BeKind28- in reply to Winter4519]

Hello

Finding the positives there is no blockage

They are fully investigating everything and they are so good at what they do and what they can offer to improve things you are in safe hands

Thank you for updating us and will look out for your next update x

[Winter4519 in reply to BeKind28-]

Yes there is no arteries blockages. But I have been diagnosed with Diluted Cardiomyopathy which is in the realms of inherited. I been asked to take a gene test. I was looking through papers related to my mother. and I just discovered on her death certificate that she also had the same condition and diagnosed. she had open heart surgery. although she had complication she survive for a few more years but left this earth due to other complication.

I have been reading up on this condition and been listening to videos directly from cardiologist on this subjects. I try not to console myself in the negative but to the here and the future with hope.

talk soon

[BeKind28- in reply to Winter4519]

x