micro vascular unstable angina

[Robinhood9999]

hi I’ve got unstable angina which didn’t show up on an angiogram as it’s not the main blood vessels. The pain nonetheless is just as bad and of course there’s nothing triggers it . NGT spray does sometimes work but it leaves me feeling sick and clammy. Any ideas on what else to do when this happens?

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I cant comment on your condition but if you use a computer based web browser (rather than phone) there are multiple previous posts about MVA under the heading Related Posts to the right of your post.

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Hello. I aways wondered if thats what i have with my heart failure. I have a huge scar on the heart too. I get pains randomly without any cause of trigger. More so at rest but not when mobile or moving usually. Sometimes sharp and sometimes dull. They ruled out normal angina. Also on the pain scale for me, its not that painful. Less pain than a stitch. So not sure. They say maybe its the heart repairing and just where its been damaged. All pipes clear too.

Does resting and laying down help it when it occurs? Sometimes a quick nap helps for me but also hard to get to sleep. I do also have the GTN spray but dont like to use since last time i used, i had a heart attack in the hospital.

[Milkfairy Heart Star]

Hello Robibhood9999

I live with vasospastic angina, which is along with microvascular angina, a type of non obstructive coronary artery disease NOCAD.

My vasospastic angina can be very unpredictable, my chest pain arriving out of nowhere! However the cold, mental, emotional and physical stress will trigger my symptoms. I experience most of my pain at rest especially in the night.

I have been in hospital since last Monday for treatment of my coronary vasospasms with IV GTN and morphine.

Have you been offered any formal testing to determine whether you have microvascular or vasospastic angina?

It's important to know whether the cause of your symptoms is due to microvascular or vasospastic angina. The symptoms can overlap but the treatment options are different.

I suggest you ask to be referred to a Cardiologist who understands microvascular and vasospastic angina so you can be offered the appropriate tests and have your medication tailored to you.

It can take time to find the best combination of medication that will work best for you.

The BHF has this information about microvascular and vasospastic angina.

bhf.org.uk/informationsuppo...

bhf.org.uk/informationsuppo...

You may find this website helpful. It was created by 4 patients with over 50 years of combined experience of living with microvascular or vasospastic angina. They are supported by 30 world leading Cardiologists.

internationalheartspasmsall...

[MissisF in reply to Milkfairy]

sorry to hear you’re in hospital. Hope you’re home soon 🫂

[Milkfairy Heart Star in reply to MissisF]

Thank you for your good wishes.

[OpenMind1 in reply to Milkfairy]

So sorry to hear you're in hospital. Hope you're feeling better soon. Have you found GTN spray helped when you had pain? I bought some after your last helpful message and used it duringva bad bought but it didn't seem to help me... take care. T

[Milkfairy Heart Star in reply to OpenMind1]

Unfortunately GTN doesn't help me. It works but I then get more painful rebound vasospasms, after using it.

GTN doesn't always help people living with microvascular angina either.

[Robinhood9999 in reply to Milkfairy]

thanks I know the feeling

[OpenMind1 in reply to Milkfairy]

Thanks. Thinking of you, hope you get the help you need. T

[Milkfairy Heart Star in reply to OpenMind1]

Thank you.I have a very good team looking after me.

[Sunshinebrew in reply to Milkfairy]

I hope you feel better soon xx

[Milkfairy Heart Star in reply to Sunshinebrew]

Thank you

[MustyK in reply to Milkfairy]

Sorry to hear that you were (may be still are) in hospital. Hope that you things have improved for you. I know that you know this, but do your best to enjoy stress-pain-worry moments. A lot of people here value your contributions. Take care

[Milkfairy Heart Star in reply to MustyK]

Thank you for your kind thoughts and gentle reminder to savour this period of being pain free 😊

I am hoping to be discharged on Friday evening.

[Maltise in reply to Milkfairy]

sorry to hear you are in the hospital and hope you get better soon.I find it very difficult feeling well one minute and then out of the blue,going on the other side .It feels like I am dying and then coming back!As I am on no meds and nitro doesn’t always work,I am very frightened.I had an attack last night and don’t know if not going to ER was the right thing to do !I have a holster for 10 days and maybe it will give some answers . Good luck and all the best to you

[Milkfairy Heart Star in reply to Maltise]

Thank you for your best wishes.Have you been able to find a Cardiologist with whom you can work ?

I am hoping to go home tomorrow after 12 days in hospital.

[Maltise in reply to Milkfairy]

I hope you get to go home today . I will see a cardiologist march 13th after my 2 weeks cardio memo monitor and blood work .

[Milkfairy Heart Star in reply to Maltise]

Good luck!I hope you are able to get some more help.

Living with unpredictable chestpain is not easy and as you say frightening.