Second opinion update: Saw cardiology... - British Heart Fou...

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Second opinion update

WIgranny profile image
6 Replies

Saw cardiology registrar for second opinion on my angina type pain after being dismissed by other local hospital

Listened properly to me and discussed my concerns re microvascular or vasospastic angina. Am starting amlodipine and have been referred for a stress MRI rather than angiogram as non invasive and to be reviewed in six months

Another appointment tomorrow at lipid clinic as work up for cardiology showed that my cholesterol had rocketed in last 2 years

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WIgranny
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6 Replies
RufusScamp profile image
RufusScamp

Just feeling you have been taken seriously must be some comfort. I hope you get the help you need, and soon.

Milkfairy profile image
MilkfairyHeart Star

It is good to hear that your concerns have not been dismissed.

It is such a relief to know that a doctor has listened.

Jacey15 profile image
Jacey15

I have a presumptive diagnosis of vasospastic angina as I have chest pain relieved by gtn, have had episodes causing my heart rate and oxygen sats to plummet and a stress echo that showed no blockages. My consultant was unwilling to do an angiogram too as he said there had been adverse outcomes. I was on amlodipine but have been switched to lercanidipine. The biggest improvement has been with isosorbide mononitrate. My dad, two sisters and a cousin also have it. The good news is we are at only slightly higher risk than the general population of having a heart attack. Glad you have had a consultant that has listened. That's the biggest battle!

Milkfairy profile image
MilkfairyHeart Star in reply to Jacey15

I am not sure that it can be said 'The good news is we are at only slightly higher risk than the general population of having a heart attack'

This is not what my Cardiologist says to me. He is a leading Interventional Professor of Cardiology.

My care plan is written specifically with this risk in mind.

The latest research is suggesting especially if someone has diffuse poorly controlled vasospasms in multiple coronary arteries the risk of a heart attack is increased and can be the same as a person living with obstructive coronary artery disease.

Also if a person experiences arrthymias during vasospasms that effects the prognosis.

ncbi.nlm.nih.gov/books/NBK4...

internationalheartspasmsall...

Angiograms with acetylcholine are carried out without adverse events in many centres in the UK, Europe and Japan.

There is a centre in Germany that has carried out over 6000.

Prof Angela Maas a Dutch Cardiologist in her book ' A Woman's Heart' discusses the use of angiograms with acetylcholine. It is the only way to confirm a diagnosis of vasospastic angina at present.

Jacey15 profile image
Jacey15 in reply to Milkfairy

Yes this is your specific experience but this is not the experience of the majority of patients with vasospastic angina who's medication controls severe episodes preventing cardiac damage.

Milkfairy profile image
MilkfairyHeart Star in reply to Jacey15

Could you please provide the evidence to support your comment?

There are several forum members who have had heart attacks due to microvascular or vasospastic angina.

Myocardial infarction non obstructive coronary arteries MINOCA .

About 6% of heart attacks are thought to be due to MINOCA.

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