I had an operation for coarctation of the aorta and open mitral valvotomy and I have recently found out my son should of been checked for Congenital heart disease when he was younger. I have some how got off the yearly checks list so was not aware at any point that checks should be done after the womb check. Has anyone else had a similar experience and what was done to resolve as with covid 19 very difficult to get my son checked for echo or MRI scan.
We are worried as after a football session recently his heart was beating faster than it would previously after a session and thinking now a lot of times his upper body heats a lot and since a child throws up a lot when his body feels hot.
Thank you
Written by
kbassi
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As well as contacting your GP or calling the BHF helpline and speaking to one of the Cardiac nurses there are several children's heart charities who may be able to help you.
The Sommerville Foundation is a charity for adults living with congential heart conditions and they have advice about where to be referred to for your heart checks.
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