Checks for Aorta for a child with a parent with Congential heart disease

[kbassi]

I had an operation for coarctation of the aorta and open mitral valvotomy and I have recently found out my son should of been checked for Congenital heart disease when he was younger. I have some how got off the yearly checks list so was not aware at any point that checks should be done after the womb check. Has anyone else had a similar experience and what was done to resolve as with covid 19 very difficult to get my son checked for echo or MRI scan.

We are worried as after a football session recently his heart was beating faster than it would previously after a session and thinking now a lot of times his upper body heats a lot and since a child throws up a lot when his body feels hot.

Thank you

[Milkfairy Heart Star]

Hello kbassi

Welcome to the forum

As well as contacting your GP or calling the BHF helpline and speaking to one of the Cardiac nurses there are several children's heart charities who may be able to help you.

Tiny tickers and Children's Heart Federation

tinytickers.org/

chfed.org.uk/

The Sommerville Foundation is a charity for adults living with congential heart conditions and they have advice about where to be referred to for your heart checks.

thesf.org.uk/

BHF Helpline

0300 330 3322

Open 9am to 5pm weekdays

10am to 4pm weekends and Bank holidays

I hope you find the support and help you need soon

[kbassi in reply to Milkfairy]

Thank you so much. I will be get in contact with them.