Takotsubo cardiomyopathy: I would like... - British Heart Fou...

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Takotsubo cardiomyopathy

Magz117 profile image
7 Replies

I would like to learn more about this topic. Anybody out there had had a Takotsubo cardiomyopathy?

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Magz117 profile image
Magz117
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7 Replies
Bagrat profile image
Bagrat

You may find this helpful youtu.be/A8cZCuVyJdo

Milkfairy profile image
MilkfairyHeart Star

Hi Magz117

The BHF have this information about Takotsubo Cardiomyopathy

Prof Dana Dawson is researching into this condition.

bhf.org.uk/informationsuppo...

Cardiomyopathy uk also has some information too

cardiomyopathy.org/takotsub...

It can be mistaken for the condition that I live with Vasospastic angina. It was once thought to be at first the cause of my problems however my echocardiogram was normal.

Both conditions can lead to severe chest pain, ST elevations on an ECG and raised Troponin levels.

The heart changes shape to look like a Japanese lobster pot hence the name.

There are few people on the forum who live with Takosubo Cardiomyopathy and I am sure they will be along to share their experiences with you.

Magz117 profile image
Magz117 in reply toMilkfairy

What a coincidence I am going to be taken part in Prof Dawson’s study. In fact I started before I left hospital on Friday 😀.

Milkfairy profile image
MilkfairyHeart Star in reply toMagz117

Oooh do tell us how you get on and what is involved by being in the study.

😊

Magz117 profile image
Magz117 in reply toMilkfairy

Will do Milkfairy. I have my baseline check ups next week.

HenryBatman profile image
HenryBatman

Hi there. I’ve just read your post. Have you suffered an event or were you researching them? I had a TTS event 4 weeks ago.

Magz117 profile image
Magz117 in reply toHenryBatman

I had one in Feb this year.

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