Pregnancy with Brugada

[Pet04]

I am new to this group. I have been diagnosed with Brugada when my daughter turned 6 months. She is going to be 5 next month. We are considering another pregnancy and having known my condition and having ICD fitted, I am seeking other women who were pregnant with Brugada and hoping they would share their experience with me. Thank you!

[Milkfairy Heart Star]

Hello Pet04

Welcome to the forum.

Have you considered asking your GP to refer you for some pre conceptual counselling ?

There are several places in the UK that run this type of service usually in larger heart centres and maternity units such as Leeds, Manchester, Cambridge etc

rbht.nhs.uk/our-services/he...

Maybe have a look at the Arrthymia Alliance website as well to see if you can link up with another mother in your situation

heartrhythmalliance.org/aa/uk

[Lezzers]

Hi Pet04, in addition to the excellent advice you've already been given, if you're a member of Facebook there's a closed group called group called ICD-crtd support uk. You may also find advice/experience from a member of that group.

[Pet04 in reply to Lezzers]

Thank you so much! That’s fantastic and I have already found it because of you!