endocarditis issue

[jackiesimmonds]

I found this site, tried to fill in my profile, it asked what health conditions I want to know about, I wrote Endocarditis,and got this back: Which conditions are you interested in?

You will have the option to hide any information you add to your profile.

Search for a condition:

endocarditis

Sorry, we don't recognise endocarditis .

Please try searching again.

THIS IS NOT HELPFUL FOR HEAVEN'S SAKE!!! ENDOCARDITIS IS A SERIOUS HEART CONDITION! i THOUGHT THIS IS A WEBSITE RUN BY THE BRITISH HEART FOUNDATION!

[Mary_Janet]

Good Evening Jackie,

Sorry that you are having technical issues. There are several people on this site who have had endocarditis. I myself did two years ago and I have had a lot of support from this site from people who those who have had this awful illness and from those who have not but understand about shared cardiac issues.

Not sure where you are on your journey but I image that at the very least you are feeling scared and worried, exhausted and feeling so unwell.

Don't have time to write much more but please tell us your story and ask questions and I am sure some will reply.

Best wishes

Mary

[Stevo1979 in reply to Mary_Janet]

I agree, must be a technical issue. I too have had endocarditis and have found the information and support from this site very helpful. Please tell us your story and what information you are looking and we will try and guide you as best we can. Remember I can only comment on my own experience and in no way am I a health professional!

[P0rtnahapp1e]

jackiesimmonds , I too, have had endocarditis and sepsis, plus AF, HF and DCM.

If I can be of any help at all to give you views from my perspective, please just ask.

[Sunnie2day]

It can be a bit frustrating to have a condition like endocarditis and get the 'not found' message on the profile page. I have recurrent pericarditis and it doesn't come up for me, either - I shrugged my shoulders and ended up writing it in my profile bio-blurb.

That said, using the search feature (top right on your screen view of any HealthUnlocked page, in hard to see light grey but it is there, I promise) brings up great results for conditions like ours and will lead you to no end of great information on many posts including links to more information from those who've been there-done that.