Cardiomyopathy

Hi all,

I have been to an appointment at the QE hospital today and met a fantastic cardiomyopathy specialist doctor.

The appointment was to see if my cardiomyopathy was hereditary.

I had an ecg & echocardiogram amongst other tests and he asked me lots of questions and looked at my most recent mri that I got my diagnosis from.

He thinks that I may not even have cardiomyopathy and that I look like my heart function has improved and I have only been on meds for 2mths max.

He feels that I may just have the LBBB and may end up coming off the meds.

Obviously this is fantastic news but I feel confused as my normal cardiologist diagnosed me and I have been told he is amazing also.

Also I still feel the same so god knows whats going on.

Has anyone else had this?

Take care all

Nat x

[Sueithy]

Nice to hear some good news. Perhaps because of the improvement they are looking at your diagnosis differently ask your HF nurse or gp they might be able to explain it to you. Good luck..xx

[topvinyl]

Hi

I have had LBBB for many years, without any meds. But in December last year I had a blood test (not sure of the spelling) NTron, which was extremely raised and was diagnosed with cardiomyopathy. Had the echo and MRI scan which confirmed my heart was severely in failure. I am now having defibrillator and pacemaker fitted next Tuesday. I have been on heart meds since March and they are really working. Breathlessness is so much better, and I feel as though I have more energy. Go ask your GP for the blood test for heart failure. This will be a definitive answer.

Good luck and all the best

Babs

[iggytiggy]

Hi, can I ask what LBBB is? I hope you don't mind me replying, I read your post and was interested to see that you also have had a variable time in terms of a diagnosis. It sounds really positive that your condition might be improving. Regards.

[Jamzy28]

I have the same disease and its dreadful I hope you are OK