British Heart Foundation
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CCF diagnosis

Hi, I am a newbie, really it is my husband who has the heart problems. We are both 70 years old and have no children, we have been enjoying life since we retired going on holidays to Tenerife and Italy and having meals out and visiting the theatre. 4 years ago my husband had cancer, non hodgkins lymphoma, but after successful chemo he is in remission and we thought we could start to relax. Then, just 2 weeks ago while on hols in Tenerife he started to get breathless when walking and very tired, we were really worried, but managed to get home safely. First thing the day we got home we were down to the Walk in Centre and long story short he was in hospital by lunchtime, diagnosed with CCF. It was all such a shock, he is out of hospital now, after being in for 1 week and on medication, including diuretics, seeing the doctor in a week for some advice and follow up He actually feels ok at the moment although taking it easy, but we are worried about the future. They didn't seem unduly concerned at the hospital although his discharge form looks scary, full of all these abbreviations of his condition, trying not to google too much as it will only worry us more. Perhaps we will feel better when we have some info from the GP. Thank you, just getting it off my chest has helped, I know you all have your problems and best wishes to you all. I will update when we have more news.

3 Replies
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Hi, is CCF another term for heart failure? My husband has HF which is managed very well with medication. It is very scary to be told you have it especially if you're not given any information. Does your husband have a HF nurse, if not ask your GP for referral. Not everyone gets one but they are fabulous for looking after you. They usually see you on a regularbasis, they can change medication if necessary, they check BP etc, & they give you advice & support. Also, there is a Facebook group called Pumping Marvellous which is a closed group for HF patients, their families & their carers, everything on the group is confidential. They also have a website & I highly recommend them, the group have been so supportive with help & advice. One last thing, try not to Google, you will find the information you get is very scary but most of it is out of date, incorrect or not applicable to your husbands condition. I hope you & your husband keep well xx

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CCF has numerous causes and you are best talking to your GP/cardiologist. A number of us have commented on the incorrect and out of date information that you can get from Dr Google. You might find it useful to ring the BHF nurses for support and more information.

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Definitely recommend phoning BHF Heart Helpline if you want to talk through anything or ask any questions. You can reach them during office hours on 0300 330 3311. You're right to stay away from Google. All the best to you and your husband x

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