What information would you find most useful? - Ataxia UK
What information would you find most useful?
I don't know what 'Vision' means in this context. Could you explain please?
Dear team,
as there are numerous SCA.types (dominant, heriditary ) with few people
actually knowing what SCA.type they are suffering from I think
"current research" is what one needs.
Regards
I personally believe that, whilst all of those are important, it would be good to hear Ataxia specific information. There are lots of differents types of Ataxia yet only one or two of the most common ones are mentioned in research articles,so as a sufferer of Episodic Ataxia I strongly believe in that.
Kind Regards,
Gemma
It`s such a shame that it is not more widely discussed/known in the world of G.P`s surgery`s.
My G.P`s surgery knew very little, if anything, about SCA6 Ataxia.