What information would you find most useful? - Ataxia UK

Ataxia UK

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What information would you find most useful?

Helski profile imageHelski85 Voters
58
Ataxia-type specific
34
Current research (general)
33
Independent living
25
Physical health
17
Vision
7
Other
5 Replies
Redriley profile image
Redriley

I don't know what 'Vision' means in this context. Could you explain please?

Helski profile image
Helski in reply to Redriley

'ability to see' - is that ok?

jurgen profile image
jurgen

Dear team,

as there are numerous SCA.types (dominant, heriditary ) with few people

actually knowing what SCA.type they are suffering from I think

"current research" is what one needs.

Regards

mcrgirl90 profile image
mcrgirl90

I personally believe that, whilst all of those are important, it would be good to hear Ataxia specific information. There are lots of differents types of Ataxia yet only one or two of the most common ones are mentioned in research articles,so as a sufferer of Episodic Ataxia I strongly believe in that.

Kind Regards,

Gemma

It`s such a shame that it is not more widely discussed/known in the world of G.P`s surgery`s.

My G.P`s surgery knew very little, if anything, about SCA6 Ataxia.