Ice breaker!: Hello everybody!!! Just... - Asthma Community ...

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Ice breaker!

EmmaF91 profile image
EmmaF91Community Ambassador
62 Replies

Hello everybody!!!

Just thought I’d make a post where people can say hi and maybe a little bit about themselves!

I know this is technically a UK based forum, but I’m also fully aware we have international users (where the asthma guidelines may be completely different 😅), new and old, as well as other people who hover in the ether but don’t want to/feel ready to post yet!

Why don’t we all say hi (or welcome to any new users!), where we’re from and maybe a little bit about ourselves/share an interesting fact if you want to!

Hi I’m EmmaF91 (but you can call me Emma 😉) and I live in Norfolk, England. I’m 28 I’ve been a severe asthmatic for 4-5 years (I think 😅) and been using the forum for 3 years (really wish I’d found it sooner!!). One random, interesting fact about me; I went to circus school for a year and studied flying trapeze, despite a fear of heights! 😂

Don’t be shy! Say hello!

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EmmaF91 profile image
EmmaF91
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62 Replies
twinkly29 profile image
twinkly29

Hey, I'm Twinkly29 😀 I'm 37 and live in North Yorkshire, England. I have asthma that's as atypical as it can be and is a complete nightmare. Thankfully my GP is brilliant and my respiratory team is (usually 😅) very good. I used to teach until my health became the delight that it is. I love crochet, something I mainly taught myself 3 or 4 years ago, and one of my respiratory nurses said that counts as exercise for me so I'll take that 😅. My interesting fact is that I used to work with someone who was once in James Bond film 😁

EmmaF91 profile image
EmmaF91Community Ambassador in reply to twinkly29

Hi Twinkly29! You may call me F... EmmaF! 😂😂😂

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply to twinkly29

Salbutamol martini - shaken, not stirred ;)

Junglechicken profile image
Junglechicken

Hi. I’m JungleChicken (user name comes from Einstein the Parrot on You Tube).

I’m in my late 30’s and live in North East England. I’ve been a sufferer all my life which was difficult to control as a child and resulted in many admissions. It became milder as I got older until last year after a bout of pneumonia. It came back with a vengeance had my first asthma attack in 25 years.

I would say that my asthma is now moderate as without a daily combo inhaler I would have frequently daily symptoms. I’m a summer girl so I’m having a bit of a tussle with the breathing at the moment.

Weirdly I struggle on my in and out breath, stats sometimes drop but not always and during a severe attack I don’t wheeze but respond to asthma medication (consultant called me interesting).

My interesting fact is that one of my triggers is drinking squash which always fascinates my asthma nurse.

twinkly29 profile image
twinkly29 in reply to Junglechicken

I shall now look up Einstein the parrot!

Interesting your asthma nurse thinks the squash thing is interesting - given squash has sorts of additives and sulphites and stuff in (I think!) I'd have thought it was quite common. I love orange squash but can't have it now sadly (the orange not the yummy additives 😁)

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Junglechicken

Hi Junglechicken

I now also have to look up Einstein the parrot!

Equally I have issues with most squash due to the sulphites in them I think (some I’m ok with tho so 🤷‍♀️🤷‍♀️ unless it’s a lower level)

Junglechicken profile image
Junglechicken in reply to EmmaF91

It’s Einstein’s nickname.🤣

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador

Hi, I'm Lysistrata, but wish I'd called myself Cassandra because it often seems more accurate in my dealings with doctors: in the myth she tangles with a doctor/god, comes off worse and then no one will believe her even though she always accurately predicts what will happen. (I once studied classics/classical mythology which is why my names tend to be from there. Lysistrata is a character from ancient Greek comedy who has a less tragic and much more entertaining backstory that has nothing to do with asthma or what I do in my normal life lol).

Like Twinkly29 I'm an atypical unicorn asthma-wise, hence my avatar, and I would love to be a bit more normal if my lungs will insist on misbehaving. I consider the most interesting thing about me should not be my lungs, but they're attention hogs.

I'm mid-30s and live round London but I'm not from there; I'm very much a city girl despite the whole air pollution thing.

My interesting fact probably can't beat trapeze and James Bond, but: I play the cello, started very young and while I have no claims to fame with it, I have done some fun stuff. I need to start playing more! I also used to play the oboe starting from age 7, which I'm fairly sure is why I have an epic best peak flow - but it does me no good at all in reality as no one quite believes it.

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Lysistrata

Hi Lysistrata... I’m always fascinated by mythology but know very few of the stories (Steve fry’s Mythos etc books are in my audible library but I haven’t pressed play yet 🙈😂)

I don’t know... playing the cello sounds like it might take you more interesting places than a year of flying trapeze 😂

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply to EmmaF91

But there is no flying involved ;) Also more dead body jokes. At least I didn't pick the double bass lol.

I can't act or dance at all so in school plays where they had to find roles for everyone they often used to make up cello parts to find something for me to do. (I'm pretty sure there isn't actually a random cellist in Bugsy Malone...).

I saw Stephen Fry live just reading from his book and it was great despite not being new to the myths so I recommend! Though wow there's a lot of cannibalism and murder.

Junglechicken profile image
Junglechicken in reply to Lysistrata

I wish I could be more “classic” asthma too and less zebra🙂

Js706 profile image
Js706

Hey, I'm JS706 :) I'm a 25 year old med student in Leicester (although from Sussex).

Like a lot of us I have weird unicorn-y severe asthma and am pretty infamous in the hospitals here for having attacks on various placement locations (I like to see it as just making sure everyone is up to date with their acute asthma knowledge ;) )

My interesting fact is that I have done a lot of musical theatre and have sung on stage at Her Majesty's Theatre in the West End! (Where Phantom of the Opera is)

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Js706

Hi Js706!

I’m sure your placement leaders/consultants are absolutely THRILLED when you give them asthma refresher courses 😅😂😂. Now imagining ortho team reacting; ‘where is bone? I can fix 😁😁! No bone😭😭?? WHAT IS LUNG??? 😨😨’ 😂😂😂 (sending love out to any orthos our there Ofc!!!)

I’m a zebra with an ice cream cone on its head 😝

Wow! Hopefully no performance anxiety for you then 😉😂

Hi I'm LDloveslattecoffee (or Lynne) and as my profile name suggests I love Latte coffee. I'm 49 and live in North Tyneside (Tyne and Wear) and I live right on the borders of Northumberland/Newcastle and in North Tyneside.

I couldn't tell you what type of asthma I have, I was diagnosed with asthma when I was 19 years old after 4 years of constant infections. I can say it is genetic in my family (loads of us have it) and we all get the hayfever and eczema too.

A random fact about me - When studying for Archaeology and Ancient History 'A' Levels I volunteered to archive photographs of Newcastle for Tyne and Wear Archives. Note I did not go into Archaeology I ended up becoming an Assessor/IQA for Health and Social Care and Children Services.

EmmaF91 profile image
EmmaF91Community Ambassador in reply to LDloveslattecoffe

Hi LDloveslattecoffee (so shocking to hear that you’re a latte fan 😉😂)

Ooo. Sounds interesting! I also get very amused when people end up in jobs completely unrelated to what they studied 😂 (from GCSEs to degree level!)

LDloveslattecoffe profile image
LDloveslattecoffe in reply to EmmaF91

I did not know what wanted to do - after O levels/CSE's and yes I am that old (last year before the GCSE's came in).

I took subjects I enjoyed from A' Levels went to Uni and did a BA Hons in History and Philosophy.

Throughout A levels and Degree did voluntary work mostly youth work and play schemes and during summer holidays did paid work for social services in Care Homes and Home Care. Was wavering between Teaching or Social Work. Decided the Social Work route but realised in final year of Dip.SW first time in a Social Work Dept. that I didn't want to be a social worker.

Continued volunteering after Uni and ended up doing course to teach/assess adults and went on from there.

I now freelance assess/verify courses.

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply to LDloveslattecoffe

I have a weird career path too - started out in humanities, ended up changing to science and now have a science-based job (though not research). I actually find the training in reading sources from when I was studying history very useful for assessing scientific papers/scientific claims. It's also handy for looking up stuff on asthma and now COVID and working out what's really happening with the science vs media reporting.

EmmaF91 profile image
EmmaF91Community Ambassador

Hi Frazzle

You sound like a proper country bumpkin (unlike me, who is neither a city dweller nor a country girl!)

If it help you feel slightly less unicorn-y my asthma first started at around 15, but luckily didn’t become a proper problem til early 20s 😅

Ooo. Sounds fun! Definitely something productive has come out of your shielding then!

NGL... I LOVE a good storm 😂

twinkly29 profile image
twinkly29

Yep another "trouble" here - nice to meet you! 😅

Glad you're enjoying the TA course!

EmmaF91 profile image
EmmaF91Community Ambassador

Oh definitely! During my ‘proper’ frequent flyer time (as I worked out only 6 admissions in the last year, as apposed to about 20 a few years ago) I was also trouble! 😂😂

New hosp now but slowly starting to get the nickname again 😅😂😂😂 (the only thing I miss about my old hosp is that cause it was so small I literally knew everyone... all the pharmacy, docs, nurses, RNs, HCAs, physios! So whenever I was in I was guaranteed a visit from at least 3 people not supposedly covering me 😂😂)

Js706 profile image
Js706

Got to love the nicknames! :P much as being recognised does suck a bit the friendly faces can make admissions a bit more pleasant sometimes! (As pleasant as a hospital trip can be...)

When I was in last week I was discharged close to handover and had about 3 members of staff come in to ask where I lived to see if they could give me a lift home...

starveycat profile image
starveycat

Hi I'm starvey cat why because a starving cat adopted me six years ago. She will come in to play and eat as long as the doors open. She has a kennel outside. I say she but am not sure but she has no pom poms.

I developed asthma in my mid seventies , bit old but never mind. I live in the beautiful county of Lincolnshire.

Nice to meet you

Poobah profile image
Poobah in reply to starveycat

"Pom poms" 😂 I love that!! 😁

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador

Lol my hospital is big but definitely get some who recognise me. I'm bad at faces though so don't always remember them, but last time the reg who remembered me had a mask on so I think I could get away with it. One time it was a consultant I definitely hadn't met but he'd heard about me apparently - notoriety! I haven't got a nickname though (that I know of ;) )

There's also the cons I've met a few times before. He remembers me, I remember him. I think he also remembers that I think he's an absolute idiot and I don't always hide it very well, so it's always strained (especially when he continues to be an absolute idiot without fail). I have similar with an A&E dr at the closest hospital who keeps appearing when go there (one of the reasons I don't like to go there) where we have pretty much the same relationship - ie there's an element of 'oh no it's you again - I think you're a PITA as a patient and I know you don't like me'. I have a private nickname for her that I won't repeat on here.

AirIsUnderrated profile image
AirIsUnderrated

What a fabulous thread! Thank you Emma for starting it - and thank you for being amazing and helpful with every rookie question I've asked.

I'm Rosey and to be honest I feel a bit of a fraud here because I'm undiagnosed. I had Covid-like symptoms in March, quietly at home before testing was available, and have been breathless and wheezy ever since. The male doctors are of the opinion that it's post-viral, can go on as long as it takes and that eventually it will "get bored and go away by itself". The female ones are slightly more sympathetic and willing to let me try things that the lovely people on here have suggested.

I live in hope that one day they'll allow me to have an examination rather than a phone call. Until then I just cough and squeak, run low-grade fevers, and pick up more inhalers from the pharmacy. Sometimes I get despondent, tearful and impatient. Other times, like today, I just feel it will be interesting to see how long I'm allowed to go on like this. I believe asthma reviews are only paid every 15 months, so a good long time, I suspect.

I live in the UK's beautiful west country with my husband and stowaway gecko from Australia. I sing (can't at the moment), crochet, recycle candles and make cards.

twinkly29 profile image
twinkly29 in reply to AirIsUnderrated

Ahhhh crochet... yes love it!

Sorry you've been struggling so long. It's quite likely it still the after effects of covid as post viral things for "just" a chest infection or nasty cold can last for many weeks, never mind something as hard hitting as covid can be. However, a bit like very young children who show asthma symptoms but get the "we don't diagnose at this age" thing, they should (in my opinion) treat the symptoms until they can find out otherwise, or try to, and not just leave you to suffer. Am guessing at some point they'll do tests to confirm or rule out asthma but the not knowing if or when must be hard. Some of the things they try may help with diagnosis or not anyway as it all forms a picture.

In the meantime, don't feel you shouldn't be here! If a strategy helps or a bit of advice helps then that's good!

AirIsUnderrated profile image
AirIsUnderrated in reply to twinkly29

Thank you so much. The helpfulness, sympathy and understanding on this site just blows me away. 🥰

Hi, I'm Huchins,

I'm mid twenties and have recently moved home to NI. I've had asthma since I was about 2 but it only became severe in my teenage years! What a joy!

Not sure about my interesting fact... I love to ski in winter (when I'm not wheezing!)

madonbrew profile image
madonbrew

This is a cool thread!

I’m Dee. Had asthma since I was 12... now 41, but recently diagnosed with Brittle asthma....or ‘your kind of asthma’ as my asthma nurse likes to call it. I’ve a rare autoimmune disease called IgG4 systemic disease which has affected my pancreas,kidneys, gall bladder... lol...thankfully not my lungs! They did their own thing!

My interesting fact is that I was once on TV in the Remembrance Service aged 10 as a girl guide, being an evacuee. And I speak French okish.

Angelgoth profile image
Angelgoth

Hi I'm Angelgoth I'm 38 and live in London. I have severe atypical asthma. I am also a part time trance DJ.

17Rose profile image
17Rose

Hi, I'm Michelle and live in East Sussex. I'm 55 and have had asthma all my life but it became severe about 5 years ago. My local certainly know me as averaging about 20 admissions a year and get called 'trouble'. I keep being asked by staff around the hospital who aren't in A&E/respiratory, which dept I work in!

Jandm profile image
Jandm

Hellooooo EmmaF91 I’m Jan from the north west. I’ve got eosinophilic asthma, TBM and bronchiectasis. Retired due to my respiratory cocktail and daily firefighting to control it all. I should have joined the circus to learn how to juggle 😂

My interesting fact is I danced with Leslie Crowther when I was little at a wedding

hilary39 profile image
hilary39

Hi everyone! This is a sweet exercise, thanks Emma :)

I'm a lifelong asthmatic but my asthma worsened significantly in my late 20s and 30s. I'm an American living in France and SOOO grateful for this message board (and the fact everyone welcomes us non-Brits) as it is enormously helpful to hear about other people's experiences and to not feel so alone.

My favorite hobbies are reading and cooking. I used to love running and really hope to get my asthma under good enough control that I can someday do a sprint triathlon.

Wheezebag profile image
Wheezebag

Hi all, I'm Anne. I'm 77 and developed asthma in my 50s. I also have mild bronchiectasis. I've had a few close calls, crawling to the health centre for a course of prednisolone, but no hospital admissions so far. I've been reading all your posts for a couple of years and really admire the way some of you cope with your severe conditions. I have a husband, five children, nine grandchildren and one great granddaughter, who is the light of my life. My interests are knitting, crochet and family history. I have traced several lines of my ancestors back to the late 18th century. I live in Stockport, Greater Manchester.

Poobah profile image
Poobah

Hi, I'm Poobah, 62 and live in deepest, darkest Oxfordshire. My nickname is taken from a character in Gilbert & Sullivan's Mikado. I've always used "Chief Poobah" to describe one boss or another whose position outstriped their ability. I use Poobah to remind me that I still have much to learn.

I've had asthma all my life and only learned in the last five years that my lungs were never fully developed. I wasn't expected to survive when born (at home) but I had different ideas, especially after I discovered breast milk. Food has always been my achilles heal. I had brittle asthma throughout my childhood and can still remember the miracle of my first dose of Ventolin - we became inseparable. I hated Prednisolone and used to hide it from my mum so that I didn't have to take it - the taste would make me gag. My darling mum was my physio and nurse and spent many a night sitting up with me while I struggled with another attack. How she got up and go to work the next day, I'll never know.

My deliverance from brittle asthma was secured by the discovery of my aspirin sensitivity at the age of 24. No hospital admissions since then. Now my asthma is less dramatic but I'm now on a cocktail of meds to keep it in check & all my inhalers are dry powder. I get flare ups rather than attacks and it's still something I'm learning about.

I retired after 41 years in the civil service. Towards the end of my career I joined the union and became a H&S rep, hence my knowledge of workplace legislation.

My main hobby is genealogy and one day I may even finish my Open University degree, just for fun 🤔. I love travelling and my biggest adventure was a trip to Antarctica - going out on zodiac boats was unbelievable and, at times, overwhelming. The air was so very pure too, it made me realise how we must all be compromised by pollution.

Thanks Emma for starting this thread and your informative posts - I still feel like a novice when it comes to asthma. We are definitely stronger when we come together as a group. Take care everyone. 🤗

Eastend555 profile image
Eastend555

Nice idea I am Eastend555 i come from East London i try and have a laugh as much as i can.I have COPD got the blue and green inhalers etc.

my foot swelled up and my dr put me on watertablets but they seem tobe working.

I had a consultation over the phone he said i will give you waer tabs fine i thought i got 3 months worth of em.

So i ask on here can i stop them my ankle has gone down i was advised not too so i am still taking them by the people on here

Anyway keep well keep smiling and remember all politicians are tossers lol

Nifflerluck profile image
Nifflerluck

Hi, I'm Nifflerluck (inspiration from Harry Potter / Fantastic beasts ... I do wish I had the luck of a Niffler though 😂) can call me Josh though 🙂.

I live in Greater Manchester yet am originally from Sunny South Africa, Cape Town to be specific. Been living in the UK for 5 years (was down South at first for just under 3 years) I lived on a thoroughbred stud farm until I was 7, and my favourite job was working as a manager on a warmblood stud farm after I finished school. So there will always be a bit of Farm boy in me 😂

I was diagnosed with asthma in September 2018, still trying to figure out where exactly I fall, I know its more than mild yet not severe either, Adding Spiriva to my mix seems to be helping keep things under relative calm and ive managed to avoid hospital for a few months so that's a positive! Ive been referred to respiratory yet not expecting any appointments anytime soon.

My interesting fact is I attended a "college of magic" when I was 11 for about 18 months and learnt to juggle along with some nifty tricks as well 😀

omoola20 profile image
omoola20

I am Lola, am 26, Live in Lagos Nigeria. My Asthma started in 2008, didn't experience any asthma attack from 2009-2016, came back seriously in 2016.

Studied Health Education, Food technology. I love learning.

Thank you EmmaF91.

twinkly29 profile image
twinkly29

Loving reading these! 😀 It's nice to know a bit about the people behind the asthma as well as it being useful in relation to people's asthma posts.

mariyn profile image
mariyn

Hi am Marilyn and have had asthma for 71 years Do I hold the record on this forum ? Studied to be a teacher but became a property developer !Knowledge is power , so by now I know as much about my condition as any specialist All best to everyone M

LizPat30 profile image
LizPat30

Hi I'm Jo, Liz Pat was my birth name. I've lived in East Sussex for 3 years. After a minor op in hospital I developed a nasty lung infection that resulted in bronchiectasis and now a diagnosis of asthma. This has been a difficult journey over the last year as I'm used to long walks and had just started ballet again. My new friends here have helped me immensely. Interesting fact we lived in Crete for 10 years. An opportunity to say thank you everyone.

Jamaica241 profile image
Jamaica241

Hi. I'm Jamaica241. Name because I had looked at pictures from last years holiday prior to becoming a member 3 weeks ago.

I was diagnosed with asthma at 52. I had a cold which developed quickly. On getting an urgent appointment with GP, advised to go straight to hospital. Diagnosed with exasperation of asthma, caused by the chest infection.

Through my own research, found out I have cough variant asthma.

I worked out I had this type of asthma for at least 10 years. Countless visits to the GP. At one point my GP told me there was nothing else she could do. Friends and work colleagues not seen for a while would say, 'you still have that cough? You need to get it checked out'. It was very debilitating as worse at night. No sleep and having to work in the day.

Had recent flare up due to weather, but now under control.

Interesting reading the posts, very informative, which I had found this sooner.

I don't have anything interesting, I'm quite boring! Chocolate makes me cough does that count.

Singinglouder profile image
Singinglouder

Hi. I'm 60, have multiple medical conditions, and had to take ill health retirement two years ago. I joined Health Unlocked when my tinnitus got worse, hence my name Singinglouder - because the singing in my ears got louder... I do also sing, tho, which developed my lungs and taught me to breathe well.

The asthma was diagnosed in my thirties, tho as I learnt more I realised I'd actually had it for years. At first, I was suspected of TB; when that tested negative, I had to have full asthma tests including a histamine challenge - reacted so badly to the first (tiny) dose, they had to stop the test, so I was diagnosed as severely atopic - and the consultant couldn't work out why I wasn't constantly in hospital with attacks. Not ending up in hospital means I'm not known to the respiratory team - but I knew I had too many things wrong with me when I phoned to change a hospital appointment and they recognised my voice before I gave my name!

My asthma isn't under good control, mostly because we can't find a preventer that has benefits outweighing the side effects - in fact, so far I get just the side effects. I'm functioning on montelukast, but I moved when I retired and the new surgery is determined to get me sorted out, so they've referred me, and I have a phone appointment booked with a new consultant next month, having had loads of tests again just before lockdown. Still don't really have attacks much, just poddle along at 70-80% of my pb. Quite good at wheezing, tho.

Odd fact: my uncle once beat Lewis Hamilton (at golf).

targ2002 profile image
targ2002

Hi I'm David, I am from Southampton, and I am 36. I was diagnosed with asthma when I was 2. Which went quite while I was in my teens, then in my 20s it came back, but it wasn't until the past 2 years where it went downhill, as of May it is now classed severe :(.

Ilovebunnies profile image
Ilovebunnies

Hi Emma, I'm ilovebunnies, Christina/Chris. I'm 67 & live in Gloucester but was born in Perth, Scotland. My asthma is classed as 'brittle', meaning I sort of live on a tightrope & can fall off without any warning (Consultants words). My claim to fame is everyone takes a look at me when I get admitted & decide they need a holiday!. Better claim to fame is talking to someone (usually when meds are being given so staff nurse) & in middle of a word will respiratory arrest (had 9 up to date & 1 cardiac arrest (at same as respiratory arrest & seemingly flatlined). I wonder why even ICU staff take one look & turn ' a whiter shade of pale -

Blue-Breeze profile image
Blue-Breeze in reply to Ilovebunnies

Not such a great claim to fame to fame ah. Must be really hard when everyone runs in the opposite direction! Then back again to help of course . Wishing you well

watergazer profile image
watergazer

Hi Emma- I feel bad that I 've used my surname and year of birth and nothing more appropriate as a name. I am married, have 3 grown children and 4 grandchildren aged 6 months to 6years and another one hopefully due in February

I was a primary school teacher which I loved. Retired 7 years ago at the age of 59 as my health was deteriorating and I found teaching was getting too stressful.

I live in what I feel is no man's land - Manchester postcode and Wigan Council tax. I lived in the Midlands till I left to train to be a teacher and have lived oop north since then.

I love walking, reading and sewing.

I believe I have lung problems since age 5; whooping cough and measles together; but nothing diagnosed until I got pneumonia 11 years ago- always had trouble with bronchitis and no stamina when running - I have asthma and mild bronchiectasis . x Anita

_Badger_ profile image
_Badger_

Hello, this is a lovely idea Emma.

I'm 36 from Northern England but living in Scotland. I've only really started taking my asthma seriously since the pandemic hit. In reading up about it when suddenly being eligible for the flu jab made me "vulnerable" (hate that word) I realised at every asthma review I massively under report my symptoms. After 20 years with asthma, I genuinely didn't know that it was more than just wheezing and shortness of breath. So I never told them about the cough I have for 6 months of the year and how a couple of times a week during winter it's so bad I can't catch my breath. Now just about to try my third preventor since March and have been told asthma absolutely shouldn't leave me coughing all winter or affect my ability to exercise!

My interesting fact... I was training to be a parkour coach until an injury put me out of action 14 months ago.

Junglechicken profile image
Junglechicken in reply to _Badger_

Hi Badger. I do understand when you talk about under reporting your symptoms. I did exactly the same for about 20 years. In the last 18 months I discovered that my asthma had most likely been out of control for a very long time, probably all my adult life. I was going through one blue inhaler a month for years (think maybe my GP at the time should have picked up on it. I’ve since changed my GP).

Hi Frazzle and EmmaF91, although I was diagnosed at 19 looking back the signs were there that I started asthma at 15 too (had 4 years of tests before got there).

Willow7733 profile image
Willow7733

Hi! My name is Darlene (people call me Dar), I am 47 years old and living on the East Coast of Canada. I have had trouble with my lungs since I was young, but only been diagnosed with severe asthma later in life, around four years ago. I currently work in the emergency department and the neonatal intensive care department of our local hospital. Still not sure of what to do with asthma symptoms. I was taught (at home) that if it is not cancer, no complaining or bothering anyone about health issues. My family doctor and pulmonologist really are great, but get frustrated when they ask me how things are going, and I say “fine!” (When they know it is not). I working on that though.

Interesting fact about me...hmmm...well, before I went into medicine, I spent a year in NYC for film school. Best time ever! We stayed on the Princeton campus, and when I wasn’t making films, I enjoyed just exploring the classrooms and reading about the work of Albert Einstein.

Blue-Breeze profile image
Blue-Breeze in reply to Willow7733

Hi. I was born in Muskoka when my parents emigrated. Once I arrived mum became home sick and they returned back to the UK. 2 years ago I eventually set foot back on Canadian soil. New Brunswick, St John coast line so happy was I

Willow7733 profile image
Willow7733 in reply to Blue-Breeze

Hi Blue-Breeze! Saint John is a nice city - lots of history to explore!! I have family there. The Maritimes are beautiful. When I was young, we moved around a lot, and lived in the USA and Canada, but always moved back here. My parents loved the people and the area.

Hi, I’m Georgia, I’m 21 and I’m from England.

I was originally diagnosed with mild asthma when I was 7 after having a chest infection, and I was first put on a preventer as my asthma got worse when I was 9/10 after another chest infection. My asthma has only ever got worse and I’ve recently been put on combination inhalers because unfortunately my body was no longer responded to my preventer inhalers.

I love exercising, and spending time with my two cats. I’ve always grown up with cats so they are luckily one of the only things that aren’t a trigger, in fact being with my favourite cat Tilly when my asthma flares up makes me feel a bit better!

Junglechicken profile image
Junglechicken in reply to

Hi Georgia. I’m such a cat person too. My Siberian cat (always thought he was a Norwegian Forest but vet thought Siberian) Tiber, won’t leave my side if my asthma is troublesome. He’s almost like a little weather vane. He knows I’m not well before I do! 🐱

in reply to Junglechicken

Hello, that is so sweet! My cat is very similar to that, she will sleep right next to me or sit with me when I have flare ups to comfort me, say hello to Tiber from me.

Junglechicken profile image
Junglechicken

Certainly will 😃

mixmix profile image
mixmix

Hey Emma,

Im mix im 29 and have severe asthma too. Before Covid i didnt see myself as a sickly person. Apart from asthma flare ups but otherwise fine. Its so funny I actually signed up to a circus school in Feb (wanted to do something out of my comfort zone) basically covid stopped that.

its great to meet you as I havent meet a young person with the same level of asthma as me!

how have you found shielding as a young person? for me its so been so hard from working and being social to now having to be isolated has been very hard.

hope to hear from you

mix

EmmaF91 profile image
EmmaF91Community Ambassador in reply to mixmix

Hi mix

For me some of shielding was fine, other things were very frustrating 😅. My family and some of my friends were really supportive, especially because I live alone, in a flat, with no outside space 😅, but others (even knowing how bad my asthma is) just didn’t get it or kept ‘forgetting’ or not understanding the difference between lockdown and shielding... one of the was proudly showing off her weight loss, I then joking lamented I had gained (cause tons of steroids and no exercise and tins aren’t exactly healthy to live off of) and she told me I should start going on runs for my hour of exercise... 1 - my lungs would strike if I do that and I wanted to avoid hosp as much as possible (i ended up in hosp twice just staying in and doing basic exercises) and 2 - WE WEREN’T ALLOWED TO LEAVE THE HOUSE!

My other frustration was the lack of access to support that other shielders got. I officially got a grand total of 2 Boris boxes get to me (despite me trying all of lockdown to get one), then it was only in July that I learnt that in my area the vulnerable (not the shielders but the 70+ etc) had been getting them from the council if they asked for it, but as I was young it hadn’t been suggested to me whilst I was waiting for my Boris box... but hey ho 😅

I’m self employed also (and got very little on the govs payment thing), so watching all my uni friends return to work a month or 2 before me was also frustrating on the financial side of things. ESP as then they started to forget that I still wasn’t working (so had 0 time for their ‘I’m not getting much money in’ talks, as I was getting 0 in...)

I’m now back at work (as of yesterday... 146 days since I last worked) despite it being a high risk job. Most of my patients understand, but I very much feel like I need to relearn small talk (and how to write 😅) after months of not 🙈

I think I coped relatively well overall tho, with the usual ups and downs, but I’m naturally more introverted and I’m used to having to stay in (or rather my many many hosp admissions had prepared me to deal with being stuck in 😅) so that probably helped. I think the biggest thing I missed was talking to physical people (a couple of my friend came and played the balcony scene from Romeo and Juliet which was nice). I also managed cause daily phone calls with parents, weekly with one group of friends, another was fortnightly and joined a games group with school friends etc who play online twice a week so I didn’t keep completely isolated and had a variety of people to talk to, and not all 1:1.

There were down days, and movie marathon days where I didn’t do anything, but equally tried to stay positive, kept up CPD for work, learnt new skills etc.

I hope you’re ok, but if you feel like you need more assistance there are quite a few support groups out there now that you can call (MIND etc etc)

Claire-Rose profile image
Claire-Rose

Hi I’m Claire I’m 29 years old from Middlesex I have recently been diagnosed with severe refractory allergic asthma after lots of admissions 3 to hdu. I have multiply allergies including cinnamon and paprika. A fun fact about me is around Christmas time I was in hdu and nurses noticed I wasn’t breathing well enough on my own so called the Other nurses drs, icu and got the crash trolley they sedated me and when I woke up they were still panicking (trying to do the abgs and making sure the aminophyline infusion was working) but not me I was too busy thinking about my messy hair and trying to get anyone to find a hairbrush for me. Ketamine is a crazy drug 😂

mylungshateme profile image
mylungshateme

Hey 🙋‍♀️ I've only just seen this 😂. I'm Charlene 38, diagnosed with asthma at 11 hayfever was my biggest trigger.

On reflection asthma been getting worse over last 4/5 years but the last year OMG whole other level 😆.

I work in healthcare, or did but been off sick since sept due to lungs, and shielding 😫. 2 children 19yrs + 2yrs... and live in south glos! Interesting fact I've learnt I'm a unicorn 🦄 and a typical stubborn healthcare patient 😂🤣🤪😜. And wish I'd discovered you guys much sooner!!! X

asthmaticclimber profile image
asthmaticclimber

Hi, I’m a little in and off on this forum but my names Alice.

I’m 21 and a severe asthmatic with potential brochiectasis, I’m on fostair 200/6, spiriva, montelukast and azithromycin daily.

I’ve had severe asthma for about 3 years so still working out some things medication wise as I’m a collector of chest infections.

And my interesting fact is that I actually have a BSc in Medical Science so I like outsmarting doctors with my cellular knowledge 😂 oh and I’m a rock climbing instructor

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