Reslizumab

[Davenpos]

Is any one on here being treated with this for eosinophil asthma .....x

[Sparkimoore]

Hi! I’m potentially for Reslizumab in the next few months as MEPOLIZUMAB has already reached its maxim & im starting to deteriorate. Yes I have severe esophillic asthma.

I actually asked the exact question as yourself about Teslizumab but got no reply from anyone who was already on it. Maybe we will be the ground breakers.

Bestest wishes

Rose

[Davenpos in reply to Sparkimoore]

Hi rose ...I am on my 7th infusion of resi next week and even though my eosinophil have dropped I am still struggling with chest....the pheno tests we do at hospital ...that cloud thing has never dropped below 250 and I am still on 40mg of pred daily ....I have tried to reduce to 30mg but then my peak flow drops to 50mg ....and it nearly time for ambulance ....so consultant think a I be on next stage when funding comes through .....all the side effects too are getting me down ...

I get so frustrated as my life has changed dramatically...

Sorry for going on ....but it actually nice to speak to someone with the same condition ...

Take care

Sonya x

[Sparkimoore in reply to Davenpos]

Hi Sonya! Like you say, it’s so good to be in contact with someone going thru a similar nightmare life deterioration. If you want to message me privately ( not sure how tho..) or give me your email address, we can chatter & compare notes & support each other. Lord I need to too. Have you been tested for CHURG STRAUSS SYNDROME???

( Just a brief reply as I’m esp knackered tonight, tho again been able to do next to nothing)

Rose