Hi all, not sure what to do. I have an immune deficiency that is being investigated by an immune clinic. When I got home from my 4th admission in 7 months there was a letter that said they had postponed my next appointment by 3 months.
That would mean a 7 month gap between appointments! Given that most of my asthma is caused by a specific set of bugs, I am really worried that any further delay would result in more relapses and admissions when I am potentially so close to the issue being resolved.
I don't know what to do? I have called the clinic and explained the situation but I have not had a reply yet.
Should I complain? I was going to talk to my asthma nurse at the difficult asthma clinic as my consultant from there referred me in the first place.
I just want this to end now as it's having such an impact on my life.