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be dioganosed year ago but still waiting for primary care for excercise not coping well aat all

11 years ago•6 Replies

sorry not coping very well i shout at people out of frustration because you ask them to do something and you get looks like you are on planet mars

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becraftygirl

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6 Replies

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Jo_BLFHelplineBritish Lung Foundation11 years ago

Hi becraftygirl

I'm sorry to read you feel so frustrated - is it pulmonary rehab what you're waiting for? It may be worth chasing up with your GP again.

It is understandable to feel frustrated and upset - it can all be very hard to cope with.

We have lots of ways we can try to support you with this - we have specialist advisers, nurses and a counsellor - if you would like to call us we can arrange for someone to speak to you - even if it is just for a chat - 03000 030 555 - Monday - Friday 10am -6pm.

Cheers

11 years ago

hi am a newbie.av just asked my new gp for pulmanory rehab exercises.old gp not fit for purpose sorry. i will not wait a year let me tell u .all wait 4 week then am on 2 gp see were wer up 2 with it.hear in oldham well its the bak of the beyond no 1 as heard of anything .yes rite .how is it ppl ave heard of rehab for drug addiction .rehab for drink addiction.but mention copd care hear in oldham.wat do u get.er er few more ers like er well would u like to ring bak r er would u like sum1 to ring u bak.r well am not sure wat the facilities are for that.god we are not from another planet .so any answer ot ther .why we are geting treated like that.er .er .well av ad enuff of er .ers. care av ad up 2 now zero .

katieoxo6011 years ago

Hate to dishearten everyone but PR for COPD seems difficult to get in my city to spite being reassured by the private hospital nurse that there are numerous groups for it in Coventry, I am still waiting following two Gp requests and a Consultants referral. The most recent request or reccommendation was in September 2012, and following a recent Xray supposedly necessary for PR, I am still waiting six months later. Hope the problem is not the same in other areas. Just thought BLF might like to know where there are breakdowns in the system.

11 years ago

My husband was told six years ago he was too well for pulmonary rehab. But then he started with colds and infections. I was really unhappy that the Docs happily gave another prescription for antibiotics and steroids without much else. My sister (who is in the nursing profession) found out that we have a specialist respiratory team in our area but you have to be referred by the GP. I rang our practise nurse and she referred him - which started the ball rolling and PR within 3 months. My advise would be to try to talk to someone at your surgery - practise nurse or respiratory nurse and ask her if she can help.

My husband joined the local BLF group - it has really helped him - mentally to know he is not on his own and the trips are pretty good!

There seems to be an assumption that if you are coping it is OK. I hope you find some answers and can get the support you need. TAD xx

becraftygirl11 years ago

hi tad glad to here he got treated quickly but i have been refered some year in may keep asking one week i got a call from the tyeam asking if i was still interested as they did not think i wanted to do it i ask you drives ya mad i said ogh yes i do not herard a thing ask nurse this morn she says she will chase them up

11 years ago

not much point getting angry,, it just gets you tired faster,,,,,,, sometimes it not the question but the way you ask!!!!!!!!!!!!! try going a bit slower..

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