hello,being told i will need a transplant in a couple of years,just have to get worse first.
any stories for mew to take on board,understand why,how what the hell to do.
hello,being told i will need a transplant in a couple of years,just have to get worse first.
any stories for mew to take on board,understand why,how what the hell to do.
Hi
I'm looking at a possible transplant too. Had initial tests but need to get to a 30 BMI before I have the full assessment. When I first heard in November last year that I would definitely need one I looked at giving up work etc but I'm still at work. I think I felt like this was the end but since then I've been working on losing weight and increasing my fitness. I was completely open with my employer and they have been incredibly supportive and I know I've been very lucky. It will take time to get used to the idea - give the BLF a call and they might be able to help you more.
I'm almost a year on from it now it gets easier to live with
Marie x
afternoon Marie,its good to hear other peoples experiences ,it calms you down a little.I currently do not have a job due to so many infections ,but just heard i have an 02 test tomorrow which my be interesting,then the GP on Wednesday & then the critical life insurer's telephone meeting on Friday.hey its like a full time job keeping on top of things
Al
As I have said in a previous post, my husband retired through ill health at the ripe old age of 47, he is still here, but had he carried on working he probably would not be, so quantity over quality any time. We do without things we can't afford but what the hell, life is better than he alternative.
I agree with amagran, I retired in 1995 because of my health and quality of life. I had a double lung transplant in 2001. Had I not given up work I wouldnt be here either. Also without the lung transplant I wouldnt have known my eight year old grand daughter or met the love of my love.
Everywhere one is different, if the physical aspect of continuing work is causing you a great deal of difficulty, well retiring is worth considering and most certainly not mad. I was medically retired at 23 now 41 because of brittle asthma. I found the change very difficult I admit, the first few months wasn't so bad, but then for many years I found it a very lonely experience not working. Now I realise that work would not be possible for me and have found various ways to manage my time so that I continue to lead a fulfilling life but not overdo things and make myself unwell.