new on here.

[nannabear123]

Hi to everyone on here. i have a lovely granchild that became ill when she was 14 with OB and have cared for her daily ever since and its been hard for me and her learning a new way of life she is now 21 . have joined this group as it can be a lonely place at times and as its a rare thing for a young person to get there arent many people that understand .

[sassy59]

Welcome to you nannabear. You’re in the right place for friendly advice if required and I’m sure others will reply soon.

What a remarkable person you are to care for your granddaughter as you do. I’m carer for my husband who has COPD and other health issues. It can be challenging at times.

I wish you well and do enjoy being part of the community. Xxx

[Patk1]

Welcome to the forum xx

[CDPO16]

Hi and welcome. Your granddaughter is lucky to have you.

[Alberta56]

Welcome to the forum. What is OB please?

[nannabear123 in reply to Alberta56]

oblititive bronculitus she was left with a fev of 25 .was never anygood at spelling but near enough.

[Alberta56 in reply to nannabear123]

That's sad in such a young person. I'm glad she's got you to care for her, but you obviously need support too- I hope you can find some.

[Ergendl]

Welcome to the site, nannabear. You could try looking up obliterative bronchiolitis or Bronchiolitis obliterans in the search box to find comments by other members about this condition.

Also try visiting the Asthma and Lung charity page for more information about this condition. While it's aimed mainly at carers of children with the condition, you may still find some of the information useful: asthmaandlung.org.uk/condit....

[Straddie]

I am leaving just as you join. I am sure you will find lots of helpful tips on this site. My departure is not one of dissatisfaction. Far from it. But I have lung cancer and a short time to live.

We’ve all had our gripes at times but my experience in the last three months has been so exceptional I must pass it on in the hope that we all keep up the struggle to save the NHS. I cannot think of a system in the world which could look after me so well. My family in Australia who hear nothing but doom and gloom have been stunned. Twice when I have felt nauseous the district nurse has been here in 10 minutes to give e an injection.my GPcalled in yesterday to see how I was. A palliative care nurse is coming today. I have home help twice a day to clean me and freshen the bed, we are being offered Hospice at Home with two nurses with me all night.

I hope others have been as lucky as me. I feel ready to die feeling peaceful and without pain.

Good luck to you all.

[watergazer in reply to Straddie]

what good care. I’m hoping you’re pain free or as much as possible. 🤗🤗

[Izb1 in reply to Straddie]

Thats so good you have been offered Hospice at Home care and pleased that you are being well looked after . My prayers are with you x

[Numptybrain in reply to Straddie]

Hope you are pain free and pass peacefully in your sleep

Night lovely

Wendy xx

[leo60 in reply to Straddie]

Sweet dreams lovely xx

[Straddie in reply to leo60]

thank you Wendy. And to all other well wishers.

[Hazel-mary in reply to Straddie]

Thinking of you. So glad you are being so well looked after

Sleep well xxxx

[nannabear123 in reply to Straddie]

Your loved ones will be ready to welcome you sleep well.xxx

[teddyd in reply to Straddie]

Thinking of you ,and sending a big hug xx

[Ilene50 in reply to Straddie]

May God bless you Straddie. Hugs and love.

[Izb1]

Hi nannabear123 and welcome to the site x

[watergazer]

hi and welcome nannabear. I hope you are supported as you support your granddaughter. Xx

[AsthmaandLung Administrator]

Hello nannabear123

A warm welcome to the forum. Do feel welcome to give our helpline a call if you would like to chat to one of our Clinical Team for information.

asthmaandlung.org.uk/helpline

Take care

Helpline Team

[Numptybrain]

Hi

I took I’ll in my childhood and my gran looked after me only years ago they didn’t know what these things were I was told bronchial bronchitis but consultant believes it was bronchiastasis all along I was constantly in and out of hospital and attended an open air school but you just adapt naturally. You’re doing a fantastic job and she knows

Take care

Wendy xx

[godstone]

Welcome to you Nannabear I hope you get lots of friendly advice and support from this forum all the best x

[leo60]

Hello and welcome I think you will find this site invaluable, I know I have! xx

[Jaybird19]

welcome nannabear . there is always someone who can help you and your granddaughter on this site .

our thought s are all with you

[Germantara]

I can understand you're situation on how how you feel at times my sister years younger than me her son is 9 he was borne with cerebral palsy and a rare fox 1 gene think only 100 kids not sure if it's in world or country he can't talk can't sit up on owen can't walk use his arms and can't eat or drink he's fed through a pump in stomach yet my sister like you're self keep going through all rough patches it does help to talk and this forum is great with lovley peaple willing to share any knowledge