P o s t. o p : N o h e l p... - Lung Conditions C...

Lung Conditions Community Forum

55,424 members66,162 posts

P o s t. o p

Jaybird19 profile image
11 Replies

N o h e l p available ..N o R e d. C r o s s h e

Written by
Jaybird19 profile image
Jaybird19
To view profiles and participate in discussions please or .
11 Replies
Oshgosh profile image
Oshgosh

how are you today ?

sassy59 profile image
sassy59

That’s not great Jaybird as you will need some help. There must be something that can be done. Xxx

Jaybird19 profile image
Jaybird19 in reply to sassy59

A Charity took it on as it seems in January but I have at home here since 16 th and only help has been a neighbour with young children and a job too. So little time .she will shop for me if i want any thing, but not eating . Told will be contacted next week but got a urine infection post catheter and had to surgery for antibiotic then had a visit from paramedic and antibiotic .

sassy59 profile image
sassy59 in reply to Jaybird19

Oh bless you. Wishing you better days ahead. Xxx💜💕

Patk1 profile image
Patk1

hope u soon feel better x

Oshgosh profile image
Oshgosh

there seems be a lack of joined up thinking by services.

Have you tried

Social services

Council

WRVS

Hospital ward ?. The 1 you were on.

The charity that you said took it on.

Make a list and tick them off when you’ve spoke to someone.

I know it sounds lazy,but when I’m having a rough day I can only cope with making 1 call a day.

Sometimes I can cope with 1 morning,1 afternoon.

I hope you can get some help xx

Jaybird19 profile image
Jaybird19 in reply to Oshgosh

thanks for list. l was handicappd by the gobble de gook but now can speak . I was given wad of help sheets from red cross who brought me home last week on sept 16 aday later than planned. When i looked at help sheets it wasnt intended for the area i lived in , it was a long week -end. After the funeral when i phoned was given alternative numbers to call. Didnt work. one person had no idea ofany help available and promised call back . No call back of course.

Couldnt do very much myself so it was really awful . I had asked neighbour who had spare keys to take all the fresh fruit i had bought for the week and eat and give it away. She was watering the plants too but didnt look like it

she took 2 nectainesand some cherries . And left the rest . I came back to 2? edible nectarines and some grapes but the fridge had horrors too . A box of grapes and 4 nectarines were covered in green moulds. Large yoghurt pot and cheese were all mouldy . Some fish and smoked salmon bits and cooked meats all festerering. And broccoli on workop with green kiTchen caddy for veg peelings open there too.

I was shattered . Found a large bag of on io ns rotting too. had not been ripened in sun and just went off. Couldnt get to bin outside garage door to throw them . Still there too. This was my full horror and had to clean it up when i couldnt even standup but went around doubled up . And so the week went o n over weekend and the funeral unti l tuesday . I had fallen through the net and nobody knew about me . I live in west ches and the red cross only works* in east cheshire. The hospital is1/2 mile nearer than that in west cheshire at chester where i worked myself for 25 years.

Today i feel a bit better but have to rest all time to recover i have had a soaking wet awakening each day so washing macine is now waiting to be emptied . Did the same last week so have to carry it upstairs in 3 stages . Had to write all this downwhile I could. Not good is it . Havent dreamt it .but have told people that this is what might await them too i used tobe proud ofthe NHS but now i pity theworkers there because iknow how the staff have been reduced and reduced again still further

Patk1 profile image
Patk1 in reply to Jaybird19

this is terrible Jaybird

Can u ring your gp or 111 tomorrow? U cant be left like this,its dreadful.

Or ring for ambulance tonight to go back in, to recover from yr op and neglect at home.my heart goes out to you.😘🤗xxx

Oshgosh profile image
Oshgosh

I’m glad you didn’t find the list patronising.

I’m appalled by your situation,is there any prospect of any help for you ?

The pressure on staff just increases.

N the subject of the wet awakening have you considered incontinence pads for the night.

I know it’s embarrassing,but if it saves a wet bed,it’s worth it.

Most nights I’m ok,but occasionally I leak,so safer to use them

Amazon usually do next day delivery,if you have the energy to do a bit of research.

Aldi do a cheaper option,but haven’t tried them.

Take care xx

Caspiana profile image
Caspiana

Hello Jaybird. What operation did you have? I'm afraid I missed it. xx 😟

Pipswhips profile image
Pipswhips

have a word with your gp they be able to get you help they can refer you to socail services. Or ring up your local coucil the should have a wefare team they might be able to help

You may also like...

Praise for an overwhelmed NHS

This wee demon has returned

Hospitalised AGAIN Over Oxygen Levels

Sheffield because theres no local special facilites available It was either there or London-well...

fibrocis /pulmonary hypertension.

email.from.ERS.rePatientBronchiectasisConference.registration