Has anyone ever grown Aspergillius Versicolor in their lungs? I have chronic allergic pulmonary Aspergillious. Many thanks.
Aspergillious : Has anyone ever grown... - Lung Conditions C...
Aspergillious
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Annie04
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22 Replies
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I had an aspergilloma about 10 years ago, a tiny tree grew in top corner of my lung, simply moved out of the way of needle during biopsy. Only way discovered was by cutting it out . Caused by inhaling a spore at some time in my life. Does this sound similar?
Lol1944
Can I ask you what your symptoms were? I have pseudomonas in my lungs from doing the gardening and inhaling the mold spores. I also think I have the fungal family in my sinuses, throat, nose and eyes . I’m on nebulizer medication for life due to this bug which is contagious but no one likes to tell you that . It’s actually a superbug in the same bracket as MRSA. It’s lethal to those with weakened immunity and or lung conditions which both apply to me. I’ve been on treatment for 2 months now but the infection could accelerate at any time and become life threatening. I’m stage 4 emphysema anyway so I know my fate but this bug is seriously messing me up
Much love
Sarah xx
Dear Sarah, I am sorry to hear you are not doing so well. I too have pseudomonas and inhale Colomycin twice daily. I was diagnosed over two years ago. My diagnoses combines Bronchiectasis and severe asthma as well. One led again to the others and are all interlinked. CT scan and a multitude of tests (still ongoing) diagnosed this. If it helps I’m colonised with staphylococcus aureus as well. I’m trained to administer IVs and have these frequently. It’s been a very long journey and lots of reading up of bugs etc. I’d suggest maybe finding a consultant that deals with your conditions as well. Pseudomonas are particularly awful to live with and make you feel so ill. Mine have not gone away but are dampened down enough to live with it. Lung clearance is the key. Get the bugs out (mine is) twice daily aerobika and saline plus exercises. I use the nebuliser so perhaps you are on this already.
As to Aspergillious high iEg numbers would be a sign of inflammation or IgG for infection. Again, you’d need help from the consultant.
I do feel for you….it’s awful staggering along feeling dreadful. I’ve been there.
Hello Annie,
I too nebulize twice a day with Colomycin but it took me 4 months to get it and then they let me run out for a week after the first months treatment because my lung doctor didn’t correctly explain to my GP that I would be on this drug for life so I did start to feel slightly better after about 2 weeks of starting it but then I had the week long break ans I’m back on it trying to get back to feeling somewhat “ok” but my lung damage is so severe I think the break has had detrimental effects and there’s no way back out of this darkness. I attempted to put in this month’s prescription well in time so I knew I definitely had it but this time they messed up the brand on saline I have so alas I’m left again chasing consultants to put this right.
I’ve been meaning to call them the last 2 days but I’m so unwell I sleep 20 hours at a time and usually only awake a few hours of an evening. I will try again tomorrow and explain my fears about these extra areas of concern.
Thank you for your time and I do hope you are doing well on this treatment. It’s a very nasty bug that most people haven’t heard of but it’s rife everywhere. Healthy People can carry it for years without knowing with the potential of passing it on to the weak but I’m almost certain I got this from gardening. That’s the first and last time I’ll ever do the weeding haha
Much love
Sarah xx
Gardening yes , it was associated with compost heaps many years ago when i was working with fungi. I used to look at fung l cultures in Love you too Petri dishes under a low power microscope ( looked like a forest). then make slides to look under higher power so I am bound to be one of those people living with it in their lungs. This was always on the open bench and were only told to work on fungi in a safety cabinet a year before i retired. Bit late then . I dont think much was known about fungal infections in lung then. I did go to a lecture given by a young doctor called Alistair Hay once and he was saying how difficult it was to diagnose and treat lung infections with aspergillus . I do remenber that one . . He was impressive. That must have been 30 yrs ago. Doesnt sound like much progress has been made since.
The fungal medication does not seem to be much improved over the years or maybe it’s an area in that it’s restricted. That’s a good insight to how it’s diagnosed over the years. My GP has a small inkling of this but I’d imagine it’s fairly uncommon. Thank goodness for FFP3 masks.
At that time I was 7years(now17) with severe copd and at a hospital stay for exacerbation. Symptoms were no different than usual but an x Ray showed up a bright area that could not be determined. Scans did not help and as said the biopsy was a failure.. I opted for its removal as lung cancer was suspected. Despite all the technology available the fungus could not be identified, otherwise I could have been prescribed antibiotics and antifungal meds. I am now often sceptical of scan interpretations.
Oh wow you’re so young to have gone through all of this. I’m going to stop thinking “why me” from now on.
I didn’t even know you could get copd at that age. I really do hope you are as well as can be.
I’m quite stumped for words if I’m honest. Nothing much shocks me but what you have said most definitely has.
:’(xx
To clarify.Diagnosed at 60 with severe copd, aspergillosis at 67, now 77. That being said I always say
Not as good as I once was but as good once as I ever was.
Cheers
Hello. Thanks for your message, hopefully you are okay now? No, I’ve had various tests scans etc and nothing showing up atm but I do have occasional bloody sputum. Generally Staph. This Aspergillius is not a one I’ve heard of before. We have had a flood in the house (through the ceiling) when the plumber had an accident. Maybe from this? It’s made my Aspergillious exacerbation go mad. It’s actually growing in the lungs so I’ve inhaled the spores. Not sure how this treated as yet. I’m on abx for14 days. It’s pretty awful.
I'm so sorry that you have this Annie's. I know a weeny but about as I read up as much as I could for when I was under consultant for investigation of aspergillosis. One of tge first things they did was test for 6 allergies including aspergillus, mould, pet dander & I cant remember the other 3. Luckily (for me) reaction to aspergillus was mild & mould was very strong. Aspergillus is fungal and treated with antifungal medication to control it. Its found in autumn leaves (seeing little children kicking through the leaves makes me squirm for their future health), compost, farmyards. Animals get it too, a friend's English Terrier in France had it.
Apparently it flares up from time to time. Really really rotten luck for you.
I recall that when under investigation someone said "don't be alarmed if you see black patches on the lung CT scan which look like patches of lung cancer".
Very best wishes, Peege
You are so right. Had a horse and of course hay and straw up to my late 30s. It was reckoned a spore had settled in a cavity in my lung and at 67 years of age decided to grow.
I'm so sorry and do consider myself very fortunate.
I used to work I stables before the crack of dawn when my kids were young in my 30s/40s. Always soaked the hay well to help eliminate the spores before hanging up the nets. I didn't know what the spores were called nor did I know that they could colonise humans too. So very unlucky for you Lol1944 that you have the allergy, I wonder why it waited until you were 67. In hospital they told me that we can all have a bit of it (just like MRSA) but its only if we're allergic to it it causes this huge problem. My late father in law developed allergies in his late 70s, when I asked the doctors why they said that often elderly people do because as we get older the body just doesn't work as well at coping with histamine or converting nourishment to vitamins etc - getting on in years is a flipping minefield 🙁I love watching Our Yorkshire Farm, often flinch when I see the kids tossing around hay 😬.
Thank you, it’s just bad luck. This exacerbation has arrived just two years after my last. It’s taken two years to have all the tests completed (covid) due to worsening asthma. I have Bronchiectasis as well with constant infections and use IVs at home but this Aspergillius is the worst so far. I now totally get it when people say how well you look and you can’t possibly be ill and understand why no plants etc drying washing and including tumbledrying necessitates masking up.
Very, very sad on looking in the Xmas drink cabinet on the home made cocktails all ready to be made up.
Such is life.
Take good care of yourself.
Hi Annie I was first diagnosed with Aspergillosis when I was 28, they thought it had come from living on a farm briefly when I was 18. It took ages to clear the shadow on the lung and loads of steroids. I have ABP A. I also have asthma since a child. I was diagnosed with Bronchiectasis in 2019 but I suspect I had had it for some time.Last year I picked up Staf A and then Pseudomonas so after IV and oral AB I am bow on Cloramycin through nebuliser. A similar story, I think they seem to go together. Like others it’s loads of lung clearance and as much exercise as I can do. I am hoping to rescue my allotment next year it had to be deserted last year. I do always use a PP 3 mask for anything relating to compost or manure.
Sorry clicked wrong reply. See below.
I had a bout of it three years ago and I believe I had it in about 1980s. I couldn’t breathe. It was discovered after I had pneumonia. I was given Itracoazole and put on steroids.
Thanks for replying. May I ask what was cultured at the time? Do you wear a mask in areas of concern? Must admit I love but detest predisilone. This was the remedy given on my last exacerbation. Maybe it will be the case this time. On antibiotics at the moment but in awful discomfort still and I’m to give an update on Monday. Keep well and safe. Strangely or not, my sense of smell is atmospheric but trouble is it’s triggering the lungs and sending asthma the same way
Hi! They never had any cultures from me. They did find my eosinophils were sky high and they did say something else but I’m not sure. I wear a mask everywhere except in my own home. I think we have to be very careful. The prednisolone did get it under control but my bones went for taking it. How does it affect you when it flares up? I was waking in the morning and couldn’t breathe very well. I complained to the Dr but they weren’t too worried as I had just been in hospital with pneumonia. Now I think abiout it that was probably caused by the Aspergillosis. It ended up one morning I couldn’t breathe very well I got my inhalers out,used it , sat on the loo and passed out. I don’t really know what happened but I came round with my hands on the shower cubicle beside the loo and I my inhalers were sliding out of my hands. I went back to bed for a while . I should have called an ambulance but I went to the Dr in the afternoon and she sent me back to hospital. The worse thing was I wasn’t allowed to drive the car for six weeks I think.
Thank you for replying. Our stories are sosimilar. Hope you feel much better. It is the exhaustion stage of all of this at the moment. We have a Gardener for a few hours a month and I look out the window.
It’s a case that I couldn’t cope with the side effects now. Asthma and Bronchiectasis are too much to contend with it. Very sad.
Wishing you well and healthy vibes for the allotment.
