Iv sat for half an hour writing a post next thing it dissapeared ??? I want to thank everyone who helped me with my lastpost youv all been a great support❤️❤️🌹👍 I don’t know what I’d do without you all. Im sorry iv not been on much but sometimes I can’t even holy my phone I’m so weak. This is due to according to a neurobiologist after ten minutes and no test except bloods but he said I had ptosis which has now got really bad since I last saw him but he’s discharched me sending a letter it said I think you have mysthenia gravis. I had also been falling a lot more.
My GP called me and told me to go to A&E right away this was for all of my symptoms . Now for more bad news the dr was lovely and every test she done she told all the results.she tried to get me a bed for 3 days as that’s how long it was going to take to see a chest and Lund consultant but it was very important I saw a neurologist . Results were she not at all happy with my blood and it should have been noticed earlier ! I don’t know what she’s talking about , I had kidney infection and I failed all the nerve tests she done on my right side( this is reason for neurologist ) the most worrying thing is she said I had a very large mass on the bottom of my lung going up the side of my lung . I’m so worried about it all . That was 2 weeks ago and iv not heard anything from any kind of Dr , my own GP said he will definetly call me this week . I’m really worried about this mass ... could anyone shed any light on any of this please. Thank you all with my whole heart ❤️ For reading my post as it’s a bit long . I keep reading over my last post and how you all help me. Your all so very kind to me. Lastly the A & E dr orginised for a team to visit me and get me help in all different ways, they came the day after I got out of hospital but I couldn’t think straight so theyr coming back next week . My very best wishes to you all . I hope youv had easy days and help when needed , I’ll keep you all in my prayers as always . 🙏🏼❤️❤️ I’d be lost without you all. Take care 🌹🌹🌸
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Shazrab
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I'm sorry that you are having so many problems again. I have no answers for you but I hope that your GP is able to get you more information about your recent A&E visit. It's awful to be left wondering and worrying. I also hope that you get more help and support at home this week.
Goodness gracious. You are really going through such a tough time. I'm so sorry. It must be all very overwhelming for you. I wish I had some magic I could perform to take this all away 😑 I just hope your doctors will pull together and some form of ongoing support and treatment will be put in place. Please do keep us updated. Much love to you.
So sorry to read all that you have had to put up with. Don’t apologise for the length of your post. We want the whole story. It sounds very difficult. You do seem to have a good-ish GP. But I am not surprised that you are worried. You are entitled to more information than you are getting, so push for more if you can. Do you have family and friends to support you?
Dear Shaz, Please don't apologise. You must keep phoning everyone , GP, Consultant, Nurse, Family. You Need Help Now. I hope your next Post is telling us you have had some help at least, and your Feeling a little Better. Thinking & Praying for you Shaz. Love. C. XXX
I'm really sorry to know you're having so many problems. Hopefully you'll start to get some help and support soon. That's a lot to cope with. I hope you start to get the answers and care you need. We are all with you in spirit 💐
Hello Shazrab. I am truly sorry to hear of all the problems and uncertainties you are going through at present. Hope you get some answers this week because it is certainly no good for your mental health as well. Please keep in touch with this lovely group. Brian
Bless you Shazrab what a lot you’re going through. I just want to wish you better days ahead and send lots of love and hugs to you. Thinking of you. Xxxxx
It’s good to hear from you as I was thinking a couple of days ago that you hadn’t posted for a while and wondering if things weren’t good. Now I know and it sounds horrendous. You have such a lot of difficulties in so many areas. I do hope you get some answers and some effective treatment from the medics.
I'm so sorry you are having a bad time no wonder you feel down, but you also seem to be trying to be positive which is good. I must admit I don't understand any of your problems apart the the lung mass. I hope you get the help you need and things go well, please keep us posted. If you ever need someone to talk to or just rant and rave at please message me. Have a lovely day and take care of yourself 😊 Bernadette xx
Oh you poor love! If you do have Myasthenia Gravis, about 3 in 10 sufferers get a “tumour” (almost always non cancerous), in the Thymus, which is a glandular area between the lungs, but it can also show on the outer edges, so that sounds quite likely. I’m not a doctor, but I nursed for 38 years, and Myasthenia Gravis was rare, but I nursed a few. You need to chase up the Doctors now. Ring the secretary if you have the name of any consultant you have been referred to, DONT wait to be contacted, you have every right to be seen quickly, diagnosed and treated. Steroids are normally prescribed, but please push for prompt treatment. You also seem to be on the road to getting practical help, which is good. Please keep us in the loop, we all care. 🥰
Oh Shazrab sorry to hear your in the wars at the moment. Hope the delay with your GP getting in touch is because he’s collating all the tests and information. Don’t hesitate to phone the surgery when you need to. Hope you get on the right meds for the MG and that your muscles recover fully, meanwhile are you under the falls team ?( perhaps worth mentioning to the GP and the hospital team when they next come)
Hope you get the result ( and treatment ) for your lungs soon. 🤞🤞Try to keep up your fluids to help fully heal your kidneys because if they don’t work effectively could cause nerve, muscle and respiratory problems.
I do keep a little note pad to remind me what the drs have said and feel it helps especially when having to deal with different drs for different things as often I find they don’t read up about your other health issues.
Keep strong and keep asking questions until it’s all sorted🤞🤞Cx
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