My daughter has been diagnosed with PPFE
is there anybody else with this condition on here ?
My daughter has been diagnosed with PPFE
is there anybody else with this condition on here ?
Sure I did post some time ago on ppfe
I think it’s name for ipf but not indopathic type but prognosis is same as ipf
I think this Blfrunner who sometimes post on here and think he might have what you talked about but am not sure BUT am about name of post
Hi sarahlotus have you heard of thoracic surgery? Apparently on occasions this is done and good outcome I know there is a place in America great story about a woman much older who now has a lease of life but each case is different but it made a good read it was positive and I wish Daughter all the luck🙏
Hi my 24yr old daughter was confirmed with ppfe last week.
How are things with your daughter. Made any progress?
I have PPFE Sarah, and I am stable...fell free to ask me anything.