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Mild COPD

howlandcircle profile image
21 Replies

orida USA.

I am on a regiment of SYMBICOURT twice daily, that seems to work out ok for me . I can walk 4 or 5 miles at a steady pace but do labor going up hill ,

I don't know if its the COPD talking or just my age?

Anyway, I do notice when I exercise heavily I have a hard time expelling air and breathing air in ,I know this is the COPD

I also have a problem with some smells .perfume ,cleaners alike, that's more of an Asthma issue I thought?? .

I see my Pulmonologist once a year for a breathing test and check up..

So my question is , anyone out there with similar symptoms as mine ?

And how long can we function at this level ?

Thanks

Steve

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howlandcircle profile image
howlandcircle
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21 Replies
guytane profile image
guytane

I have similar as soon as I go for a slow jog my lungs seem to close up but normal activities seam ok iwas wondering can you stil have ashma as well as copd as my doc said I don't have ashma any more just copd

Samwing profile image
Samwing in reply toguytane

Hi am surprised your doctor says you don't have asthma anymore just COPD. I have both conditions Asthma since childhood & COPD diagnosed 4 years ago. In my experience asthma has not 'gone away' & both conditions should be considered in your treatment. However I'm sure your Doctor has confirmed that you dont have Asthma any more in your tests but should not be assumed. If the 2 conditions combined are present they are known as ACOS. Worth checking with your GP or nurse.

hypercat54 profile image
hypercat54 in reply toSamwing

I have asthma and copd but my respiratory nurse said they only treat the main illness which is copd. x

guytane profile image
guytane in reply tohypercat54

I am on a purple inhaler does that treat ashma and copd to geathear as I stil get tite chested some days as b for I got diagnosed with copd I never had any issues with breathing but when doc said I have mild copd that's when my breathing sorta got worse as I was on a brown inhaler for ashma b for they said I had copd

stamford1234 profile image
stamford1234

I don't have asthma, just COPD, I can't tolerate strong perfumes or cleaning stuff. I find deep tummy type breathing exercises (3 in then 6 out slowly) a couple of times a day and when needed is very helpful. Counting seems to focus the mind too so you don't panic. I can walk a good long distance on the flat but inclines and hills beat me. I just go very slowly. For how long we can function I don't know. Keep away from people with colds, eat well, sleep well, do your exercise, take your meds try to keep positive, wash your hands a lot. You can't do much more than that. I am severe, bordering on v severe. I don't plan on giving up anytime soon! Good luck with your appointments

Ergendl profile image
Ergendl

Hi, Steve. I'm similar. Was diagnosed with moderate COPD in 2015. At last year's annual assessment I had improved to an FEV1 in the normal range, but still have the obstructive curve in the breathing graph. Last year I was also told I have asthma, whereas when I was first diagnosed I was told my COPD was a little bit reactive. Singing and exercise and avoiding all the things that make my condition worse, have helped in my improvement. I take Seretide regularly and Ventolin as required.

Help_61 profile image
Help_61

You have a long way to go yet I can only walk for 3 minutes without oxygen

hypercat54 profile image
hypercat54

Hi it is common for copders to be sensitive to all sorts of smells ie aerosols, paint fumes, cigarette smoke etc. Have you been to PR yet - if not you need to go. Also learn some breathing exercises. You can learn those at PR or look online.

If you lead a healthy lifestyle there is no reason why you can't stay mild for many years, as although it is a progressive illness it usually only progresses slowly especially at the milder stages. x

peege profile image
peege

Hi, welcome to the BLF!

I've read many times here how difficult people find strong smells, chemical smells and fumes whatever their lung disease. Air freshener is one of the worst. Here in the uk it's easy to find non smelly stuff, it costs a little more so I use less. P

in reply topeege

What products do u use please.

peege profile image
peege in reply to

Ecover mostly and anything unperfumed for my skin, deodorant and personal items. Damp dusting. If you. Write 'cleaning products' in the search bar you may find others. P

in reply topeege

Thanks

syntax profile image
syntax

That is a level l should very much like to be at.Stay away from anything which

produces dust.l went to work in a factory where Enamel Glass Powder was floating

in the air 24/7. Move to the country side,but be selective. Meaning do not live on the

main road.

l have been taught to take very short breath in,then blow out as much as l can,

this if done as advised (VERY SHORT BREATH IN ) will empty your chest. This l do

5 times 4 times a day,it may help ,it should help.

Aingeful profile image
Aingeful

Yes,I have IPF and have had to de chemicalise my home!! I buy Eco cleaning stuff and make home made air fresheners etc. This sensitivity has gone worse during the last couple of years. Hills,slopes and stairs are difficult and have been for a long time though I can walk on the flat easily enough. Oxygen levels 97 ,lung function 59%. No idea how long I can go on, we slow down with age anyway? Good luck!! 😍

James48 profile image
James48

Hi howlandcircle, you are not in a bad place at all compared to many people on here. It is a progressive illness but no one knows how quickly anyone will progress. There are many people with COPD who go on for years to a good age.

The main thing that worsens the condition are chest infections which can scar the lungs and reduce lung function. Good diet and exercise play a big part in slowing the progress.

Plenty of information on this site from other folks and you can search in the top right hand corner for specific information.

Good luck,

guytane profile image
guytane in reply toJames48

their is a tablet you can get in healh food shops called serrepeptase which is an enzyme of the silk worm which states it eats scar tissue in human bodys so if people have scar tissue on the lungs this would dissolve it I have heard its very gd

James48 profile image
James48 in reply toguytane

I am surprised at this claim and why it's not been recommended by any of the medical profession concerned with the treatment of COPD in the UK?

There is no mention of it by NICE in the UK (The National Institute for Health and Care Excellence) who say yes or no to any new drug or treatment coming onto the UK market after quite a while in the research and development stage.

Stem cell technology to repair damaged lungs is reported with some success but not in the UK.

guytane profile image
guytane in reply toJames48

well they woulden recommend it take mony away from pharmicupitail companys

janno profile image
janno

My symptoms are the same and I have mild COPD with asthma overlap. (ACOS) I am on Trelegy Elipta and a rescue inhaler which I seldom need. I also find inclines very difficult. I have been told by my Dr. that as long as I manage to stay healthy otherwise, there is no reason that it will necessarily progress. I don't believe Dr's. are in the practice of giving false hope, so I am encouraged by this. I know there are many on this site that will disagree with me as far as the progression goes, but I also do not know at what stage they were diagnosed.

jackdup profile image
jackdup

If your COPD is only mild I am surprised you are on an inhaler that has a steroid component. It may be something you should check with your doctor as if you don’t need a steroid there is no reason to be taking one. There can obviously be things we are not aware of so would check with your doctor.

music profile image
music in reply tojackdup

I thought exactly the same jackdup

Music

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