Palliative doctors

[Tinypuff]

Have been referred to see a palliative Doctor, very short of breath, don’t think this is to good, anyone else had this ?

[Fleurbaby]

No bullshit, ok? But, palliative is not good!

But again, it is not necessarily the end either!

Logic would be to send you straight up to a palliative ward, your doctor has possibly run out of ideas, & (hopefully) is relying on the best experience or knowledge or access to better quality of care (like 1on1??), & that is to put you in the best place for the stage you are!

DON'T WORRY! OK.? THEY ARE USUALLY THE BEST OF THE BEST, (MEDICAL navy seals! )

Good luck!

[Tinypuff in reply to Fleurbaby]

How I wish it was bullshit, but it’s not, thank you for your reply.

[Hidden]

Palliative means relieving pain or alleviating a problem without dealing with the cause. Most doctors who treat us folk with COPD work on that basis because, as we all know, there is no cure for the problem. Having a doctor that specialises in doing that can only be considered good. You can look forward to being a lot more comfortable than you maybe have been in the past. 🤗

[Tree20862]

Palliative used to be end of life care but has grown to be deal with chronic illness /pain and live your life to your fullest ability.

It isn't bad. It will supplement and support you.

[stone-UK]

Hi

palliative Care can just be to ensure you have a adequate management plan in place, with the correct care package, not as sinister as you may think.

From BLF twitter account

Quote

Agreeing to palliative care isn’t a sign of giving up – it’s an opportunity to plan and really focus on the person instead of the illness."

[Fleurbaby]

The above replies, simply Express what I was saying, except my reply was probably a bit crudely put! As I think you misread it.

[Caspiana in reply to Fleurbaby]

Hi Fleurbaby .

Sorry to intrude. 😊

Although I sort of understand your need for emphasis , perhaps a little more decorum considering the delicate topic at hand may be called for. Hope you are well as can be. xx 🌿

[Fleurbaby in reply to Caspiana]

Yes sorry, I am...can be pretty blunt.

[Caspiana in reply to Fleurbaby]

No need to apologise Fleurbaby . Blunt is sometimes very good in the right circumstances. xx 🙋

[Caspiana]

Hello Tinypuff 😊 (love your username) .

I think many people may have the idea that palliative care is some kind of end, like giving up. But no,it's not a bad thing. It is extra care put in place to relieve symptoms like shortness of breath, fatigue ,stress and pain brought on by our disease. So please don't be despondent. We are here for you. *Gentle hugs*

Cas xx 😘🌷🌻🌼

[hypercat54]

Hi I think you have to be very ill to have palliative care as it's more an end of life thing, though you can still live a long time like that. Do you know your FEV1? x

[sak50 in reply to hypercat54]

It's no longer used as an end of life thing solely. As stated it's to support you with a chronic illness. They want to get to you early to get plans in place. I have a palliative nurse and she's brilliant.

[Hidden]

Yes. It was a bit of a shock at the time bit I am still here! Have to say they were brilliant at getting pain relief sorted out and a few other practical things. I would view this as a positive. All the best.

[Carnival567]

I am on ‘supportive care’ ( just another word for palliative care really) because I have so many problems that any surgical intervention would be dangerous. This means for me that I am treated with medical care, that is lots of medication. I am able to contact my cardiologist at any time, and see my lung doctor regularly, also my excellent respiratory nurse. My GP sees me every six weeks or so. I hope that for you palliative care means much the same. It has certainly helped me be more confident in dealing with my various problems. I wish you all the best for your care xxx

[Roessner541]

Yes, they wanted to put me on hospice for awhile I refused so they put me on palliative care and made it with flying colors.

[Feelingblessed2013]

People tend to think palliative care is another name for hospice but it is not. Hospice is end of life care, palliative is to help the patient live their best life possible while managing illness/pain. A palliative care team is a support team for the patient.

[goat-lady]

That was a great thread. Thanks everyone, I learnt lots. M

[simbanine]

HI all. Referral to palliative care for me back in January was the best thing since sliced bread. The IPF was really getting me down and I did not know who to turn to. Being a bit out in the sticks is great but can have its down side. She set up various links to other helpers and when she asked the surgery to jump it was a case of "how high". She seems to have a good set up with my marvelous GP so when I also went down with shingles in February they were both on the case in no time and all at home which saved long trips to hospital, She has not made it go away, but somehow seems to make it so much easier to cope with, so can't speak too highly of the service.

[Fleurbaby]

Wow! I agree! What a fantastic post, Tinypuff. Boy, you got them all to open up! Thanks, l learned more from your replies than I have ever learned from a single point of reference. Yahoo!!!!!!