So went to me hospital appointment few days ago first time since 2016 because felt like i was receiving the proper care n attention and dint know wat to do other than become really depressed and have just received a copy of the letter shes sent me. Dr and it basically coming across that shes skeptical that i even have a respiratory condition despite my medical history shes saying me fingers arnt clubbed which they clearly and other
S##t .. She also knows about my. Pip assessment on monday and I feel Like shes done it deliberate coz the letter doesnt match how me hospital appointment went wtf and this is why i dropped of the face of the earth and disappeared last time carnt win stop everything and do it all legit and this wat ya met with never claimed benefits before 2010 hate claiming fullstop
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Thomsk
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Feel for you Thomsk I've noticed over the years the consultants like to play down the lung issue, I don't know if they do it in the hope it will keep their patients more positive but it sure does not help when it comes to applying for PIP especially when consultant puts down on paper playing down the lung issues. It is so frustrating.
I have found in the past the GP is the one that can tell it how it is for you with regard to PIP information.
There is no denying a CT scan result so if you can get a copy of that from your GP I am sure that can help and any other xray results on paper copied to your GP.
Its a very stressful process the PIP process and its important to get all the help you can, don't try and do it all on your own.
There could be a unbiased benefit advisory service in your area or citizens advice beureaux specialist advisor. there is a group on FB as well which could help direct you to appropriate person.
Good luck with your PIP, I know its nigh on impossible with PIP but try not to stress, take some de-stress time as well.
There's awful Thomsk, what a blow for you. It does seem that it has been done deliberately with your pop assessment coming up. I really feel for you and hope your assessment goes well. Take care 😊 Bernadette xx
When you have your assessment don’t dwell on your conditions. Rather make sure that the assessor knows how they limit your ability to lead your daily life and emphasise the help that you need to do this There is a lot of emphasis now on the anxiety which your state of health and symptoms can cause you which makes it difficult to go out of the house or plan journeys. In my case the anxiety that I will not be able to breathe or have the energy prevents me from using public transport.
Thats one of things she said on clinical examination revels a gentleman who is well at rest his chest is clear his calfs tender his hands are nicotine stained but show no sign of clubbing or cyanosis ! My hands are flipping not stained!! And how does she know about me calfs she dint have her xray specs on ! Coz she dint look or squeeze them and shes also for some un reason put he is independant of all activities of daily living and The reason how they knew i had lung problems in the beginning is coz of my clubbed fingers thats wats getting me mad tho as well as shes saying one of the diagnosis was Desquamative interstital Pneumonitis which is the overwhelming cause of smoking which i already knew this years ago as well as COPD and she saying that intrestingley the arthralgia and myalgia the patient dint mention on his last reveiw in 2016 which i mentioned to my ild gp and it says on my medical record because my new GPwas talking to me about it of which she then says he understand he is waiting a rhumatology apointment and i will ensure they they are aware of the gentleman i boubt this will change our diagnosis in anyway s
I suspect that this wasn't a respiratory consultant who saw you. To make a diagnosis dependant on clubbing of the fingers is plainly tosh. Anyway you seem to have a variety of conditions which are making your daily life difficult. As I suggested, concentrate on that at your assessment.Good luck
Its as if she was wrighting a letter to the pip not me GP just on about irelavent stuff like mr kearns was a former inmate at HMP leeds , and stuff like " over all he is fully active in all his daily routines" we dint even talk about wat i did during the day how would she know for the past 2 ear ive been scared to come out the house threw fear of passing with the coughing need help badly a feel like if i get a second opinion it'll just make things worse dont know wat to do hopefully the dr will see me tomorrow and prove to him that my fingers arnt nicotine stained And need a understanding as to why the letter is the way it is ??
Littlepom. That's how I feel. I have asthma, bronchiectasis, epilepsy and I have panic attacks, mainly because I'm scared to use public transport alone, just in case...it is really dibilatating. That's what noone sees.
Thank you very much for your reply Sir/Miss reading your reply has just brought my heart level right down my mrs 's works as a housing support and complex needs worker and she helpped me fill in the form coz that's Wat she does at work and plus am grateful coz even i Carnt understand my own hand writing and for once i dint even need to exaggerate anything it was all the truth and she was saying somert about on health i scored 95 and mobility i scored 45 Wat ever that is but she said its there job to score you as little as possible i had a ESA assessment last year and was in there less than 10 minutes and before the woman rushed me out the door because i couldnt breath coz the heating had been turned up full and as u know having lung problems and been in a room with the heating up full blast its hard to breath without choking,, AND SERIOUSLY THANK YOU SO MUCH FOR REPLYING MEANS ALOT ❤️❤️❤️
Thomsk - PIP is not about your specific illness/es but about how they affect you in managing the activities of daily living. You need medical evidence but the rest of it is down to you filling the forms in truthfully. Many people fall down on this so if you are not given PIP and decide to appeal, maybe seek help with the documentation. It helps to complete a daily diary for a short while , outlining how your illness is affecting you.
You say your consultant is sceptical that you have respiratory disease. You can ask for a second opinion if you wish.
Yeah this has been explained to me my missis works for housing support and complex needs and to be honest i dont know how not to be truth full plus the wife knows all my details anyway but thank youx
Good luck with your assessment . Perhaps it’s an idea to answer every questions only relating to your absolute worse days? And remember apart from assessing you it’s their job to save money/ budgets!!
I’m so sorry that’s some real bullshit sounds to me. They are famous here in the states for making sure you get screwed out of the few dollars government gives for basic survival. That’s why I only see Dr’s now that are in the game of helping ME and not the drug companies or government. It’s hard work seeking good doctors. May I suggest asking your peers there in the UK who they trust /use for docs or who a good person to see when you go for assessments. Please don’t get depressed on the whole issue as nothing good will come of that. Persist in the fight you are worth it as a fellow human being! I’ve had to face similar circumstances and things are better now that I’ve learned who can and cannot be trusted with my best interests. I had a heart valve choking itself out and health insurance denied me til I ended up in ER and a surgeon friend of family came in and took charge moved me to a different hospital, cleared his next morning schedule and took it upon himself to open me up and FIX IT! It was impressive. Somebody’s gonna help you but you must be persistent and learn to be your best advocate! Best of good fortune to you, keep faith and hope at your forefront, I will have you in my thoughts and meditations, please smile something better will happen soon
Have you tried a support body? As I was referred but you can refer yourself too...In all honesty I didn't do anything regarding pip they did it all...Please get in touch with adult social services....I so hope you get the help you need...
Yes,but you see your Doctor more than the consultant,and the Doctor can advise him /her on your condition. My Doctor is always writing to the consultant to advise.
This way more gets done,and l also write to him and the team.This is because l am
always searching the net for new drugs,some the consultant does not know exist.
My hospital consultant, that I only saw for ten minutes, after a hour's wait, clearly wanted me of his patient's list, as he was over worked.
My FEV1 is 30% and a CT scan showed that I have severe emphysema, but as I don't know if I ever have excaberations, as my breathing is bad most of the time, he deemed I was well enough not to be on his list.
PIP is very much based on what help you need doing day to day activities. I went to the appeal stage and won, on a paper appeal, even after telling them honestly what the lung consultant had said.
Good Luck on Monday - the whole process is very stressful and insulting - no one should have to go through it, if they're ill.
So sorry to hear your struggling it’s a bad habit hospitals have of altering the facts of an an appointment in a letter and then the pip issues come in to play. It’s a minefield I’ve had an assessment just waiting to hear. I hope your assessment goes ok and you get the help .
General information about PIPS Assessments - if you feel that you have a genuine entitlement. Emphasise what you ARE UNABLE to do.e.g unable to walk more than 20 metres, unable to cook for oneself, unable to dress without assistance, unable to attend to one's personal hygiene. The assessors pay little regard to medical reports (which, of course, is entirely wrong) and base their assessment almost entirely on what you tell them and what they observe and don't fall for the old trick whereby they will deliberately drop something to see if you jump up to pick it up. Do not exaggerate your symptoms The assessors primary aim is to ensure that you don't get the benefit. These comments are not designed to cheat the system but to give some advice to people who are properly entitled. I hope this is of some help to people who are being improperly denied their entitlement and, of course, you can always appeal the decision if you feel that it is wrong.
Its a new dr i ask her if would be able to do a test to see if i was allergic to penicillin so she prescribed me doxicillin and said take 2 a day , i toke 1 and nxt thing i was throwing up violently and was unable to get out of bed was ill for 2 days n the wife said test done your allergic 😂so i dont have much faith in her as a dr plus ive only been with this surgory 2 months Sorry. About the spelling and thank you for replying
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institual lung disease
CT SCAN - more bad news
Who could you ask about if your entitled to any benifits. 
1st hospital respirtitatry appointment cancelled 
