Thank you ,

[Julier1955]

Thanks to all of you lovely people that responded to me yesterday I really do feel so much better today. I’m on the up mentally and feel positive today. A lot of your stories have made me feel less isolated and would dearly love to make this a daily routine getting to know some of you lovelies.

Look forward to it 💕

[Damon1864 Volunteer]

So pleased you are feeling better, and we would love this to be a daily thing. It's always nice to meet and get to know new people. Take care, have a lovely day. 😊 Bernadette xxx

[Julier1955 in reply to Damon1864]

Hi Bernadette, thanks it’s so nice to hear from people in similar situations it certainly makes you feel less alone. I love meeting new people anyway so what better way?

Julie x

[HungryHufflepuff]

Glad to know you’re feeling better today than yesterday. That’s good news indeed 😊

[Whitechinchilla]

Glad to hear that. I too find immense help from reading all the posts as all here have something valuable to offer.

For me it is as much about not feeling alone plus all the informed advice folk have to give. Stay positive, and keep posting, so we can all support each other.

Very good wishes.

[Julier1955 in reply to Whitechinchilla]

Cheers I appreciate it. Trying to be positive today but failing miserably. I think one of the reasons is I don’t like being alone. My husband still works so he is away all day. I have a good neighbour but she is old and not always up for company as she gets tired but when she is oh boy she is wicked 😂

[philvaughan]

hi julier just joined also happy to talk any time even wen im low lol I have ra/ild amongst many other things but be pleased to talk or listen good health to you all as much as possible

[Julier1955 in reply to philvaughan]

Hi there, thanks some days I am low too like today. I feel like crying all the time but not sure what for. What’s your back story, if it’s not too personal to ask?

Julie x

[philvaughan in reply to Julier1955]

firstly hello I got ra in 2010 gp gave me mtx which gave me ild 2011 sulphasalazine gave me severe bleed 2012 leflunomide gave me severe weight loss 6 st in 6 months 2015 rituximab infusions without mtx great for ra but more damage to lungs 2016 decided no more meds 2018 blood clot aorta arteries in legs not good may lose shortly became homeless in aug 2018 and split from wife in temp acc arguing with council over bedroom allocation but im still alive and kicking just like you have good and bad days

[Julier1955 in reply to philvaughan]

OMG what a list 😒 you are so happy and blasé I admire your spirit. Well let’s just get on with it and support each other and others and laugh because laughter kills all negativity. My back story isn’t half that so jeez I’m counting the odd blessing at the moment x

[philvaughan in reply to Julier1955]

unfortunately that's only some of it ive lived past my sell by date and continue to have daily problems im waiting today for the result of a social services report to decide if I need overnight care I refuse to have full time care I am still able to drive and walk very short distances ive become a hermit which bothers me but waiting on a home ? I have to be proud and try to get on what get the most is people judging us I walk my sats drop to 80s but I still walk so I cant be ill they think little do they know but still judge rant done im fighting the system and I think maybe that's what keeps me going ill have to find more to fight for good luck and ty

[philvaughan]

got my call bad news again apparently I require care only during the day not at night so only require 1 bedroom am I mad

[Julier1955]

Hi Phil, sorry to hear that. What reasoning have they given for that decision?