PLCH NEWLY DIAGNOSED

[meme226]

I just want to meet people with PLCH. I was misdiagnosed a few years back and just last month they confirmed I have PLCH. I can say I have a great doctor.. just want to hear others story.

[sassy59]

Welcome meme, I hope you get to chat with others who have PLCH but it’s a very rare disease.

Take care xxxxx

[meme226 in reply to sassy59]

Yes ma'am it is very rare... I have a great pulmonogist . I have been through a lot in the past 4 yrs.. I just had respiratory failure. My illness flares up with the heat..

[katieoxo60]

Welcome to the site sorry I do not have PLCH, but we chat on lots of lung illness on here x

[meme226 in reply to katieoxo60]

I would love to chat and learn about many lung issues... I have other lung issues besides PLCH.what lung problems are you living with?

[katieoxo60 in reply to meme226]

Good morning, you must find it difficult with several things effecting your lungs, I myself have diagnosed COPD/ Asthma . Well controlled with inhalers but sadly most lung problems create disability issues with mobility ect.and flare ups. I have what they call an unexplained reflex cough requiring an inhaler .Both the cough & asthma run in my family. Hope that answers your question. Have a good day x

[Matilda_1922]

What does PLCH stand for.

[mrsmummy in reply to Matilda_1922]

Pulmonary Langerhans' cell histiocytosis (PLCH)

[L5682]

Hi MEME,

I also was just diagnosed with PLCH and I'm trying to learn more about it because it is rare it only took about 3 months for me to know I have it.